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. Author manuscript; available in PMC: 2014 Dec 9.
Published in final edited form as: J Med Ethics. 2012 May 9;38(9):561–566. doi: 10.1136/medethics-2012-100600

Table 1. Discussion Guide Topics.

FIRST SATURDAY SECOND SATURDAY

MORNING MORNING
Overview of biobanking Genetics Return of your research results

Genetics—what comes to mind Interest in group results
Genetic research—what comes to mind Interest in individual results
Reasons people participate in a biobank Interest and disinterest in certain results
Reasons people do not participate in a biobank Who should, or should not, decide whether to return results
How you feel about participating in a biobank How you feel about participating in a biobank

AFTERNOON AFTERNOON
Biobank-based genetic research Return of your child's research results

Informed consent—information needed Interest in group results
Giving broad consent Interest in individual results
Who is trusted, and not trusted, to protect privacy Interest and disinterest in certain results
Data sharing with other researchers Who should, or should not, decide whether to return results
How you feel about participating in a biobank Whether child should be told parents have results
How you feel about your child participating in a biobank

This table is modified from BLOCKED.