Table 1.
Points to Consider12
| 1. How will the system make transparent the uses and flows of clinical information so that patients can make informed choices about disclosing/restricting their information? |
| 2. How will the system structure the array of choices patients can specify for disclosure and nondisclosure of their clinical information? |
| 3. How will technologically and/or medically unsophisticated patients, or those with other challenges, exercise their choices for granular control of their information? |
| 4. How will the system inform providers of a patient’s preferences for data access/restrictions? |
| 5. Under what circumstances/conditions will the system allow health care providers to access patient data in ways that may override stated preferences for granular control? |
| 6. How will patients be told about mandatory reporting requirements (e.g., public health, gunshots, abuse, disease registries, etc.) and their impact on granular control? |