Table 1.
Variables | Strata | No. (%) | Mean ± SD | Mean ± SD normative population (Child Self-report) | Mean ± SD normative population (Parent proxy-report) |
---|---|---|---|---|---|
Gender | Female | 20 (46.5) | |||
Male | 23 (53.5) | ||||
Age (years) | 17.09 ± 8.98 | ||||
Patients | Adult | 17 (40.0) | |||
Pediatric | 26 (60.0) | ||||
Education level (pediatric patients) | Nursery | 3 (11.5) | |||
Primary school | 12 (46.2) | ||||
Junior secondary school | 11 (42.3) | ||||
Education level (adult patients) | Secondary school | 14 (82.4) | |||
Post-graduate | 3 (17.6) | ||||
Employment status (adult patients) | Student | 5 (29.4) | |||
Employed | 9 (52.9) | ||||
Unemployed | 3 (17.7) | ||||
Treatment type | Diet | 21 (48.8) | |||
BH4 | 22 (51.2) | ||||
Treatment length (months) | 209.65 ± 140.02 | ||||
QoL pediatric (range: 0-100) | 79.26 ± 82.97 | 79,37 ± 10 [24] | 81,74 ± 11,21 [24] | ||
QoL adults (range: 4-20) | 16.47 ± 0.51 | 14,9 ± 2,9 [26] |
Number (No.), percentage (%), mean and standard deviation (SD).