Table 1.
Clinical and demographic characteristics
| Mean (SD) | ||||
|---|---|---|---|---|
| Total Sample N = 200 |
Adolescents n = 56 |
Emerging Adults n = 66 |
Young Adults n = 78 |
|
| Age (years) | 24.55 (6.79) | 16.78 (1.15) | 22.53 (2.03) | 31.83 (3.70) |
| Gender (% male) | 49% | 51.8% | 57.6% | 39.7% |
| Race (% Caucasian) | 86.5% | 83.9% | 81.8% | 92.3% |
| Education (% completed or current) | ||||
| High School | 68.4% | 92.9% | 62.1% | 52.6% |
| Post-High School/Trade School | 6.6% | 5.4% | 7.6% | 6.4% |
| College | 18.9% | 1.8% | 22.7% | 26.9% |
| Graduate/Professional | 6.1% | -- | 3% | 12.8% |
| Lesion Severity | ||||
| Simple | 23% | 26.8% | 28.8% | 15.4% |
| Isolated BAV | 8% | 7.1% | 15% | 3.8% |
| ASD | 5% | 5.3% | 3% | 7.7% |
| VSD | 5% | 7.1% | 9% | 1.3% |
| Mild PS | 2% | 5.3% | 0% | 1.3% |
| Other | 3% | 2% | 1.8% | 1.3% |
| Moderate | 44.5% | 51.8% | 39.4% | 43.6% |
| TOF | 13% | 14.2% | 12.1% | 14.1% |
| COA | 11% | 21.4% | 6% | 9% |
| Moderate/Severe PS | 4% | 3.5% | 1.5% | 7.7% |
| AVSD/AV Canal | 2.5% | 2% | 3% | 2.5% |
| Ebstein’s Anomaly | 1% | 2% | 1.5% | 1.3% |
| APVR | 1% | 2% | 1.5% | 1.3% |
| Other | 12% | 6.7% | 13.8% | 7.7% |
| Complex | 32.5% | 21.4% | 31.8% | 41% |
| TGA | 12.5% | 7.1% | 10.6% | 16.7% |
| Single Ventricle | 9% | 9.1% | 9% | 9% |
| DORV | 5% | 0% | 4.5% | 9% |
| Other | 7% | 5.2% | 7.7% | 6.3% |
| Open-Heart Surgeries | ||||
| Septal defect closure | 16% | 3.6% | 18.2% | 23.1% |
| Valve repair | 11.5% | 3.6% | 12.1% | 16.7% |
| Valve replacement | 19% | 10.7% | 27.8% | 17.9% |
| Shunt placement | 16% | 10.7% | 12.1% | 23.1% |
| Arterial switch | 2% | 0% | 4.5% | 1.3% |
| COA repair | 10.5% | 17.9% | 6.1% | 9% |
| Fontan procedure | 10% | 8.9% | 9.1% | 11.5% |
| Glenn procedure | 3.5% | 3.6% | 7.6% | 0% |
| Mustard/Senning procedure | 7% | 3.6% | 4.5% | 11.5% |
| Rastelli procedure | 1.5% | 0% | 1.5% | 2.6% |
| TOF repair | 19.5% | 19.6% | 16.7% | 21.8% |
| Other | 16.5% | 17.9% | 12.1% | 7.7% |
| No surgery | 20% | 32.1% | 24.2% | 19.2% |
| Disease Knowledge (CHD AIM) | ||||
| Recall (% accuracy) | .61 (.28) | .55 (.34) | .64 (.26) | .62 (.26) |
| General (% accuracy) | .77 (.17) | .72 (.18)a | .76 (.16)a | .82 (.15)b |
| Risk (% accuracy) | .51 (.28) | .37 (.26)a | .42 (.27)a | .68 (.22)b |
| Perceived Risk (CHD AIM) | 1.70 (1.56) | 1.23 (1.49)a | 1.45 (1.38)a | 2.24 (1.60)b |
| Saturated Fat Intake (FIS) | 30.36 (5.34) | 31.41 (5.15) | 30.31 (20.76) | 29.63 (5.07) |
| Physical Activity (GLT) | 28.50 (22.95) | 36.16 (23.13)a | 30.14 (20.76) | 22.39 (23.18)b |
Note. Means that are significantly different from other means have different superscripts (i.e., a, b, c). A mean without a superscript is not significantly different from any other mean for that variable.
ASD = atrial septal defect; APVR = anomalous pulmonary venous return; AV = atrioventricular; AVSD = atrioventricular septal defect; BAV = bicuspid aortic valve; CHD AIM = Congenital Heart Disease Assessment of Information Measure; COA = coarctation of the aorta; DOV = double-outlet ventricle; FIS = Northwest Lipid Research Clinic Fat Intake Scale; GLT = Godin Leisure-Time Questionnaire; PS = pulmonary stenosis; SD = standard deviation; TGA = transposition of the great arteries; TOF = Tetralogy of Fallot.
p < .05