Table 1.

Demographic data and clinical data for the sample

Age	n (%)
<40 years	169 (56.5%)
40 –44 years	30 (10%)
45–59 years	70 (23.4%)
≥60 years	18 (6%)
Not stated	12 (4%)
Educational level	n (%)
College or university degree	108 (36.1%)
Postgraduate degree	39 (13.0%)
High school	97 (32.4%)
Not stated	55 (18.4%)
Employment	n (%)
Employed full-time	115 (38.5%)
Employed part-time	21 (7.0%)
Worked at home	9 (3.0%)
Student	26 (8.7%)
Retired	48 (16.1%)
Unemployed	34 (11.4%)
Not stated	46 (15.4%)
Clinical data
Median time since diagnosis	30.75 years (interquartile range: 20; min–max: 1–56 years)
Prophylactic use	65%
On demand use	35%