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. 2014 Dec 22;9(12):e115654. doi: 10.1371/journal.pone.0115654

Table 2. Themes and Subthemes covered by existing DM-specific instruments and PROMIS version 1.0 and 2.0 item banks.

ADDQoL D-39 DHP-1 DQoL PROMIS
EMOTIONS
Negative emotions
Frustration* + +
e.g. I feel frustrated
Quick/hot-tempered* + +
e.g. I am hot-tempered
Annoyance* + + +
e.g. I feel annoyed when others fuss over me
Depressed* + + +
e.g. I feel depressed
Hopeless* +
e.g. I feel hopeless
Helpless* + +
e.g. I feel helpless
Disappointment* +
e.g. I feel disappointed
Anxiety* + + + + +
e.g. I feel anxious
Fear* + +
e.g. I feel fearful
Deprived* + +
e.g. My condition has prevented me from doing things that I want to do
Violence +
e.g. I turn to violence as a response
Depression
e.g. I was diagnosed with depression
Embarrassed + +
e.g. I feel embarrassed
Mood swings +
e.g. I have mood swings
Positive emotions
Positivity when DM control is good + +
e.g. I feel positive when the control of my condition is good
Neutral emotions
Nonchalant
e.g. I feel nonchalant towards my condition
Coping emotions
Envy* +
e.g. I feel envious
Resigned* +
e.g. I feel resigned to my condition
Gratitude* +
e.g. I feel more thankful with what I have
Acceptance* +
e.g. I am comfortable with who I am
EMPOWERMENT
Empowered to help others
e.g. I feel empowered to help others +
FAMILY
Support from family*
e.g. I get support from my family +
Spend more time with family*
e.g. I spend more time with my family +
Family negatively affected by patient's DM*
e.g. My family has been negatively affected by my condition + +
Relationships*
Strained relationships – spousal* +
e.g. DM has strained my relationship with my spouse
Strained relationships – children* +
e.g. DM has strained my relationship with my children
Strained relationships – other family members* +
e.g. DM has strained my relationship with my other family members
Improved relationships*
e.g. DM has improved my relationship with my family +
Family planning
e.g. DM has influenced my decision to have children +
FINANCE
Opportunity cost of DM
e.g. I have lost income because of my condition +
Direct medical and non-medical cost
e.g. I have spent a lot of money on treating DM +
Financial burden on family
e.g. My condition has increased the financial burden on my family
Personal financial stress
e.g. I experience personal financial stress because of my condition +
DISEASE MANAGEMENT
Disease adaptation
Adapting to DM is challenging + + +
e.g. I feel that adapting to my condition is challenging
Lifestyle modifications +
e.g. I have to change my lifestyle
Work life modifications + +
e.g. I have to change my work life
Dietary
Diet restriction + + + +
e.g. I cannot eat certain foods
Drink restriction + + +
e.g. I cannot drink certain drinks
Change in dietary habits + +
e.g. I have made changes to my eating habits
Travel restriction*
e.g. My travel is limited + + +
Difficulties walking*
e.g. I have difficulties walking + +
Reduced ability to do household chores*
e.g. I cannot do household chores + + +
Improved physical health status*
e.g. My physical health has improved + +
Sleep*
My sleep is affected + + +
SOCIAL
Do not want others to know*
e.g. I do not want others to know that I have DM + +
See no need for others to know*
e.g. I do not think it is necessary for others to know that I have DM +
Social support*
e.g. I have support from my friends +
Self-esteem*
e.g. I feel inferior to others + + + +
Stigma and discrimination*
Discrimination perceived + + +
e.g. I feel that others discriminate against me
Lack of understanding by others + +
e.g. I feel that others do not understand me
Social activities
Changed participation in social activities because of DM +
e.g. I have to modify my participation in social activities
Involved friends in social activities that were modified because of DM
e.g. I have engaged my friends in my modified social activities
Self-image
e.g. I am conscious of how others view me + +
Religion/spirituality
Use religion to cope with DM
e.g. I turn to religion to help me cope
Reduced participation in religious activities
e.g. I have to decrease my participation in religious activities