TABLE 1.
Characteristics of patients hospitalized for ≥180 consecutive days
| Patient characteristic | Total | Alive | Deceased |
|---|---|---|---|
| Patients | 61* (100) | 45 (74) | 16 (26) |
| Male sex | 34 (56) | 25 (41) | 9 (15) |
| Female sex | 27 (44) | 20 (33) | 7 (11) |
| Age at admission | |||
| ≤30 days | 37 (61) | 28 (46) | 9 (15) |
| 30 days to ≤1 year | 10 (16) | 9 (15) | 1 (2) |
| 1 to ≤5 years | 4 (7) | 1 (2) | 3 (5) |
| 5 to ≤12 years | 5 (8) | 4 (7) | 1 (2) |
| >12 years | 5 (8) | 3 (5) | 2 (3) |
| Cardiac disease | 17 (28) | 10 (16) | 7 (11) |
| Multiple congenital anomalies | 10 (16) | 8 (13) | 2 (3) |
| Short bowel syndrome | 9 (15) | 6 (10) | 3 (5) |
| Neurological/neuromuscular disease | 7 (11) | 6 (10) | 1 (2) |
| ICU stay ≥2 months (total) | 41 (67) | 30 (49) | 11 (18) |
| ICU stay <2 months (total) | 19 (31) | 16 (26) | 3 (5) |
| No ICU stay | 1 (2) | 0 (0) | 1 (2) |
| Awaiting solid organ transplant | 24 (39) | 16 (26) | 8 (13) |
| Completed solid organ transplant | 15 (25) | 11 (18) | 4 (7) |
| Tracheostomy ± ventilator | 32 (52) | 27 (44) | 5 (8) |
| Isolated airway anomaly | 6 (10) | 6 (10) | 0 (0) |
| Tracheostomy excluding patients with isolated airway anomaly | 26 (43) | 21 (34) | 5 (8) |
Data presented as n (%).
*
61 patients had 64 eligible hospitalizations: one patient had three stays of >180 days and is alive, and another had two stays and is deceased. The denominator for the results is the number of patients, not the number of hospitalizations. For children with repeat hospitalizations, data represent the first eligible stay. ICU Intensive care unit