Table 3.
Baseline scores, mean changes and percentage of responders for HAEMO-QOL dimension and total scores for all versions.
| Children-completed versions | Parents/adults-completed versions | |||||||
|---|---|---|---|---|---|---|---|---|
| Baseline mean score (SD) | Mean change (SD) | Responder threshold | Responders (%) | Baseline mean score (SD) | Mean change (SD) | Responder threshold | Responders (%) | |
| 4–7 years | ||||||||
| Physical health | 27.8 (20.7) | −9.9 (31.9) | −13.3 | 29.2 | 27.9 (19.6) | −6.8 (25.8) | −12.1 | 41.7 |
| Feeling | 17.5 (23.9) | 10.8 (28.8) | −10.1 | 16.7 | 18.4 (21.0) | −2.7 (25.9) | −10.0 | 37.5 |
| View | 14.3 (16.9) | 5.6 (20.2) | −15.6 | 12.5 | 15.8 (19.3) | −8.9 (20.2) | −12.2 | 25.0 |
| Family | 47.0 (27.1) | 4.9 (27.5) | −13.1 | 16.7 | 47.8 (29.4) | −5.4 (22.1) | −9.5 | 29.2 |
| Friend | 25.0 (33.6) | 21.1 (30.3) | –* | – | 41.7 (28.2) | −6.6 (26.1) | –* | – |
| Others | 17.0 (21.0) | 1.3 (34.8) | −16.0 | 29.2 | 16.3 (19.0) | −5.6 (19.6) | −11.7 | 37.5 |
| Sport | 37.7 (25.4) | −6.3 (26.4) | −19.4 | 12.5 | 40.4 (21.6) | 0.5 (25.1) | −18.4 | 12.5 |
| Treatment | 40.5 (34.9) | −4.2 (47.9) | −20.3 | 33.3 | 29.5 (22.3) | −0.6 (27.3) | −19.6 | 16.7 |
| Total score | 30.0 (13.6) | 1.4 (13.4) | −7.1 | 16.7 | 31.0 (14.4) | −6.0 (13.3) | −5.8 | 37.5 |
| 8–12 years | ||||||||
| Physical health | 27.0 (17.8) | −11.3 (19.3) | −8.1 | 57.1 | 28.8 (15.3) | −17.7 (14.2) | −8.1 | 61.9 |
| Feeling | 16.7 (14.7) | −5.4 (15.3) | −7.2 | 38.1 | 25.6 (17.8) | −4.0 (23.7) | −7.0 | 38.1 |
| View | 21.7 (12.5) | −1.4 (21.8) | −8.5 | 33.3 | 24.5 (14.5) | −0.9 (20.6) | −10.1 | 19.0 |
| Family | 33.1 (15.1) | 5.3 (16.6) | −12.5 | 9.5 | 33.4 (17.0) | 1.1 (13.7) | −9.3 | 28.6 |
| Friend | 38.4 (27.0) | 0.6 (33.4) | −12.7 | 23.8 | 39.1 (23.7) | 4.4 (29.4) | −10.7 | 23.8 |
| Perceived support | 44.6 (23.7) | −1.2 (25.6) | −10.9 | 33.3 | 46.1 (17.5) | −1.0 (22.2) | −10.6 | 28.6 |
| Others | 18.7 (16.6) | −3.0 (17.7) | −9.0 | 28.6 | 21.5 (17.7) | −1.4 (19.0) | −7.0 | 28.6 |
| Sport | 34.3 (15.7) | −4.2 (14.4) | −12.3 | 33.3 | 40.9 (15.6) | −10.0 (16.8) | −13.3 | 23.8 |
| Dealing | 22.8 (17.4) | 0.7 (19.3) | −7.6 | 23.8 | 24.2 (15.4) | −4.4 (17.0) | −7.3 | 38.1 |
| Treatment | 18.4 (17.3) | −3.2 (12.9) | −11.7 | 28.6 | 20.3 (11.4) | −7.0 (14.9) | −8.1 | 38.1 |
| Total score | 26.1 (8.9) | −2.6 (10.7) | −3.8 | 42.9 | 29.3 (8.5) | −4.7 (13.7) | −2.5 | 52.4 |
| Adolescents | ||||||||
| Physical health | 33.7 (23.2) | −15.0 (18.4) | −8.6 | 35.3 | 35.4 (27.2) | −11.8 (19.1) | −8.3 | 35.3 |
| Feeling | 21.7 (16.5) | −7.3 (12.3) | −9.8 | 23.5 | 34.5 (15.6) | −11.6 (19.1) | −7.7 | 29.4 |
| View | 31.8 (19.6) | −7.5 (18.4) | −16.0 | 23.5 | 30.5 (16.4) | −7.6 (19.0) | −14.0 | 29.4 |
| Family | 35.2 (20.6) | −4.4 (17.9) | −10.0 | 29.4 | 39.6 (14.7) | −3.1 (13.8) | −8.9 | 23.5 |
| Friend | 51.7 (26.9) | −1.0 (29.1) | −14.4 | 23.5 | 50.0 (27.1) | −10.9 (26.7) | −11.5 | 29.4 |
| Perceived support | 43.3 (18.2) | 7.3 (26.4) | −12.4 | 17.6 | 46.4 (18.8) | −8.3 (19.1) | −11.6 | 29.4 |
| Others | 20.8 (20.2) | −5.9 (19.3) | −9.8 | 23.5 | 28.6 (21.7) | −16.0 (20.4) | −7.7 | 47.1 |
| Sport | 44.2 (17.8) | −14.1 (17.3) | −20.3 | 17.6 | 50.7 (16.0) | −20.2 (13.3) | −20.2 | 29.4 |
| Dealing | 24.8 (15.9) | −5.5 (18.6) | −8.4 | 29.4 | 25.4 (14.1) | −4.0 (7.5) | −8.7 | 11.8 |
| Treatment | 24.6 (15.2) | −8.1 (9.9) | −12.1 | 23.5 | 26.2 (13.2) | −13.1 (13.6) | −11.7 | 29.4 |
| Future | 30.0 (10.1) | 9.4 (25.8) | −8.9 | 11.8 | 31.3 (20.1) | −1.0 (23.5) | −26.3 | 11.8 |
| Relationship | 9.6 (14.6) | −5.0 (19.7) | −9.4 | 23.5 | 13.6 (30.3) | −5.6 (11.0) | −7.5 | 11.8 |
| Total score | 31.4 (9.6) | −5.8 (10.0) | −4.8 | 35.3 | 35.6 (10.3) | −10.0 (7.1) | −5.0 | 52.9 |
| Adults | ||||||||
| Physical health | – | – | – | – | 41.6 (24.5) | −4.9 (20.6) | −8.9 | 39.5 |
| Feeling | – | – | – | – | 26.9 (24.0) | −1.8 (17.6) | −10.1 | 31.1 |
| View | – | – | – | – | 37.4 (21.1) | −0.8 (16.7) | −20.3 | 11.8 |
| Family planning | – | – | – | – | 17.9 (26.7) | 3.0 (16.8) | −11.9 | 10.1 |
| Work | – | – | – | – | 26.8 (26.1) | −3.8 (18.0) | −16.5 | 17.6 |
| Sport | – | – | – | – | 54.5 (22.3) | −1.0 (18.7) | −16.4 | 11.8 |
| Dealing | – | – | – | – | 19.7 (18.9) | −1.7 (20.7) | −10.0 | 20.2 |
| Treatment | – | – | – | – | 32.7 (16.9) | −0.8 (15.2) | −9.7 | 18.5 |
| Future | – | – | – | – | 39.2 (24.4) | −1.9 (15.4) | −16.0 | 16.0 |
| Partnership | – | – | – | – | 18.2 (28.8) | −0.7 (18.5) | −10.0 | 15.1 |
| Total score | – | – | – | – | 33.4 (16.0) | −1.6 (8.9) | −6.3 | 24.4 |
*
Single-item dimension not enabling the calculation of the internal consistency coefficient, thus threshold could not be computed.