Categories of negative and positive consequences reported 10, 4, and 3 years after diagnosis
| Category | T8 (10 years) n | T7 (4 years) n | T6 (3 years) n | Changes at T8 |
|---|---|---|---|---|
| Negative consequences | ||||
| Bodily concerns | 21 | 17 | 16 | |
| Existential thoughts about loss and life | 13 | — | — | New |
| Psychological problems | 9 | — | — | Focus shifted |
| Overlap: negative self-esteem (T6/T7) | — | 0 | 3 | |
| Overlap: unpleasant thoughts and feelings (T6/T7) | — | 6 | 10 | |
| Difficulties interacting with others | 8 | — | — | |
| Health worries | 8 | — | — | New |
| Fertility concerns | 4 | — | — | New |
| Frustrations about health care | 3 | — | — | New |
| Outside circle of friends (T6/T7) | — | 7 | 4 | Disappeared |
| Difficulties with school/ work (T6/T7) | — | 1 | 1 | Disappeared |
| Time consumption and financial issues (T6/T7) | — | 0 | 4 | Disappeared |
| Positive consequences | ||||
| Positive view of life | 19 | 11 | 15 | |
| Positive view of self | 18 | — | — | Focus shifted |
| Overlap with: Good self-esteem (T6/T7) | — | 10 | 13 | |
| Compassion for others | 12 | — | — | New |
| Close relationships | 10 | 7 | 12 | |
| Gained knowledge about disease and health care | 7 | 11 | 8 | |
| Financial gains | 2 | 3 | 4 | |
| Broader perspectives (T6/T7) | — | 1 | 1 | Disappeared |
| n= | 28 | 25* | 25* |
*
Participants who completed T6, T7, T8.