TABLE IV.

The Goals and Output of the ExPO-r-Net Project (European Expert Paediatric Oncology Reference Network for Diagnostics and Treatment)

	Goal	Output/field
1	Identify the medical needs of rare children and adolescents with cancer with experts of the European Council of Clinical Research and address the challenges in terms of costs, resources, psychological burden and ethical aspects	Paediatric needs
2	Build a Paediatric Oncology European Research Network (ERN)—a roadmap to identified and certified reference expert centres	Network
3	Establish a Paediatric Oncology tumour board ERN working to common standards and using IT tools based on E-Health concepts for sharing and providing expertise and advice	Tumour boards
4	Define the criteria for a common process for identification and designation of paediatric oncology expert centres in Europe	Criteria for designation
5	Address the cross-border dimension of long-term follow-up of childhood cancer survivors in Europe: the survivorship passport as an instrument for crucial treatment and follow-up data	Long-term follow-up
6	Integrate very rare tumours and soft tissue sarcomas into the European reference network	Very rare tumours