Table 2.

Themes and Related Subthemes

Theme	Subtheme
Needing support to overcome limitations in daily life	Feeling inhibited due to the child's condition
	Feeling concerned about the situation
	Feeling vulnerable
Desiring coordination of care within the society as support	Requesting routines in coordinating care for the child
	Feeling significant for the care of the child
Requesting privacy as support	Needing to prioritize oneself
	Losing privacy
Supportive confirmation	Being pleased with the support that is available
	Feeling supported by parents of other children with heart defects
	Feeling proud and relieved about the knowledge gained through having a sick child
	Feeling satisfied in being close to the child