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. Author manuscript; available in PMC: 2015 Jan 7.
Published in final edited form as: J Urol. 2013 Jul 30;191(1):48–53. doi: 10.1016/j.juro.2013.07.062

Table 2.

Unmet informational and supportive care needs at the time of diagnosis

Unmet Needs reported during the time of
diagnosis
Full Sample
(n = 30)
Themes
Information believed to be useful but not offered or fully discussed by the physician 56.67%
  • Treatment options and side effects

  • Self-care following surgery

  • Medical insurance

  • Recovery rate

  • Change in sexual function

  • Preparation for surgery

Searched for information about treatment options and treatment side effects 16.67%
  • Searched the internet

  • Talked to other patients

  • Joined support groups

  • Joined online patients blogs

Type of information searched about treatment options and treatment side effects 26.67%
  • Cancer control and recovery rate

  • Post-surgical self-care

  • The impact of treatment on sexual function

  • Satisfaction with treatment outcomes

  • Chemotherapy and side effects

The physician’s provided information about change in the sexual function during counseling 20%
  • The physician discussed some of the potential impact of treatment on sexual function

  • The physician discussed erectile dysfunction

Involvement in the treatment decision making 50%
  • Made their own personal choice of treatment

  • Made their decision based on physicians’ recommendation

  • Made treatment decision after considering family members recommendations

  • Getting a second opinion

No active involvement in the treatment decision making 26.67%
  • Treatment decision was made by the physician

  • Patients had no other choice but the treatment received because of co- existing comorbidity

  • Patients had no other choice but the treatment received because of the surgical outcomes

Worries about treatment 23.33%
  • Worries about the surgical outcomes

  • Worries about treatment side effects Worries about changes in sexual function

  • Worries about survival

Emotional distress at time of diagnosis 33.33%
  • Felt depressed

  • Had negative emotions

  • Felt shocked and scared

  • Felt angry