Table 3.

Unmet informational and supportive care needs following surgery

Unmet Needs reported following Surgery	Full Sample (n = 30)	Themes
Received multiple home visits from a visiting nurse	53.33%	A visiting nurse assisted the patient with the use of stomal appliances after discharge A visiting nurse assisted the patient with the use of catheters after discharge A visiting nurse assisted the patient with surgery-related complications
Dissatisfaction with supportive care received from visiting nurses	30%	Visiting nurses lacks expertise in stoma care Visiting nurses lack expertise in use of stoma appliances Visiting nurses lack expertise in catheter care
Difficulty related to recovery	50%	Difficulty related to physical recovery Difficulty related to emotional recovery Difficulties with bowel function
Had complications after treatment	46.67%	Complication from cystectomy Complication from stoma-related surgeries
Had difficulty after surgery from changes in urinary function	43.33%	Had little or no control of urine Difficulty with urine leakage Bother with incontinence Bother with odor
Had difficulty related to use of stomal appliances	20%	Difficulty with the use of stomal appliances Had allergic reaction to stomal appliances Difficulty with changing the stomal bag when away from home
Had difficulty related to neobladder care	20%	Difficulty using public restrooms Difficulty with irrigation Difficulty because of infection Difficulty urinating with a neobladder
Had difficulty related to use of catheters	10%	Difficulty with the use of catheters Had difficulty emptying the pouch completely
Spouse/partner helped with stomal care	36.67%	Helped with changing the stomal bag Help with ordering stomal appliances Provided needed information about stomal care
Spouse/partner helped with catheters	6.67%	Helped with irrigating the pouch Helped with the use of catheters
Spouse/partner helped with other things related to treatment	13.33%	Helped holding and cleaning appliances Helped with changing the wet bed-sheets Helped with putting cloth on
Patient relied on him/herself in post-treatment self- care	10%	Did not receive help from family members or friends with self-care after treatment Was not satisfied with the support received from family members or friends after treatment