Table.
Demographics and Disease/Treatment Information of Patients and Parentsa
| No. (%) |
||
|---|---|---|
| Patients (n = 14) | Parents (n = 18) | |
| Demographics | ||
| Age, y, mean (SD) [range] | 21.93 (3.45) [16-28] | 52.60 (7.41) [36-66] |
| Race/ethnicity | ||
| White | 8 (57) | 12 (67) |
| Asian | 4 (29) | 4 (22) |
| African American/black | 2 (14) | 2 (11) |
| Female | 8 (57) | 16 (89) |
| Education | ||
| High school | 5 (36) | 1 (6) |
| Some college or completed 2-y degree | 2 (14) | 4 (22) |
| 4-y College degree | 7 (50) | 9 (50) |
| Graduate school | 0 | 4 (22) |
| Marital status | ||
| Single | 9 (64) | 1 (6) |
| Committed relationship | 5 (36) | 2 (11) |
| Married | 0 | 15 (83) |
| Family income, $b | ||
| <25 000 | 1 (7) | 1 (6) |
| 25 000-49 999 | 1 (7) | 0 |
| 50 000-74 999 | 2 (14) | 3 (17) |
| 75 000-99 999 | 1 (7) | 3 (17) |
| ≥100 000 | 6 (43) | 9 (50) |
| Personal income of patient, $ | ||
| No personal income | 6 (43) | ... |
| <25 000 | 1 (7) | ... |
| 25 000-49 999 | 1 (7) | ... |
| 50 000-74 999 | 3 (21) | ... |
| Employment status | ||
| Not working | 7 (50) | 5 (28) |
| Part time | 3 (21) | 5 (28) |
| Full time | 4 (29) | 8 (44) |
| Disease/treatmentc | ||
| Diagnosis | ||
| Leukemia | 3 (21) | 1 (25) |
| Lymphoma | 3 (21) | 1 (25) |
| Brain tumor | 4 (29) | 1 (25) |
| Other solid tumor | 4 (29) | 1 (25) |
| Years since diagnosis, mean (SD) [range] | 14.35 (5.30) [7-23] | 13.83 (5.47) [7-24] |
| Treatment | ||
| Major surgery | 10 (71) | 2 (50) |
| Chemotherapy | 13 (93) | 4 (100) |
| Irradiation | 5 (36) | 3 (75) |
| Bone marrow transplant | 0 | 1 (25) |
| Years not receiving treatment, mean (SD) [range] | 12.50 (5.92) [4-22] | 12.35 (6.06) [3-22] |
| Relapse (yes) | 3 (21) | 1 (25) |
| Second cancer (yes) | 2 (14) | 0 |
| Follow-up care | ||
| Pediatric oncology provider | 13 (93) | 2 (50) |
| Adult oncology provider | 1 (7) | 0 |
| Adult primary care provider | 1 (7) | 1 (25) |
| Pediatric primary care provider | 0 | 0 |
| No follow-up care | 0 | 1 (25) |
a
Percentages in each category may not add up to 100% because of missing data or participants who selected multiple options.
b
Parent-reported family income was only reported once for married couples who participated together.
c
Data in the Parent column for disease/treatment information represents the children of the parents who participated without their children (n = 4). Patient disease characteristics were reported by the parent unless a parent did not participate (n = 2).