Table 1. Distribution of characteristics of children and parents and of parental attitude and knowledge of HLA-typing and CD.
| Netherlands | Germany | Spain | Total | |
|---|---|---|---|---|
| Children (n) | 214 | 181 | 91 | 486 |
| Participation (%) | 85 | 62 | 59 | 72 |
| Age children (mean, years) | 3.2 | 4.1 | 5.0** | 3.8 |
| Sex children (% male) | 49 | 53 | 52 | 51 |
| Questionnaire filled in by mother (%) | 88 | 89 | 74 | 86 |
| Educational level of parents, higha (%) | 82 | 81 | 65 | 79 |
| Children HLA DQ2 and/or DQ8 positive (%) | 86 | 80 | 93 | 85 |
| Time between HLA-result and questionnaire (mean, years)** | 2.4 | 2.8 | 4.4** | 2.8 |
| Knowledge of HLA-typing: both questions answered correctly (%) | 97** | 87 | 92 | 92 |
| No regrets about HLA-typing (%) | 98 | 100 | 97 | 99 |
| Parents would repeat HLA-typing in future children (%) | 98 | 97 | 94 | 97 |
| Perception of given information about HLA-typing as good (%) | 89 | 86 | 67 | 85 |
| Searched for extra information about HLA-typing (%) | 31 | 38 | 39 | 34 |
**P<0.05.
a
Defined as: low – vocational education; intermediate – General Certificate of Secondary Education (GCSE)/A-level; high – (under)graduate/postgraduate.