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. Author manuscript; available in PMC: 2016 May 1.
Published in final edited form as: Qual Life Res. 2014 Aug 26;24(5):1043–1055. doi: 10.1007/s11136-014-0780-y

Table 2.

Recruitment and data collection procedures in the two studies.

Caring Hearts Study Keystone Beacon Community (KBC) Project
Participant pool
  • Eligible patients scheduled for outpatient cardiology clinic visit (N=31)

  • Eligible patients enrolled in another study who agreed to contact from other studies (N=32)

• Eligible patients who had received case management. The survey had an intervention and control group. The control group consisted of eligible patients who had been discharged from a hospital not participating in the project (and therefore did not receive KBC case management)
Recruitment approach
  • Research team screens medical record for eligibility.

  • Potential participants contacted by phone to explain study; recruitment proceeds if interested; appointment scheduled.

  • Recruited individuals briefed and consented at first appointment.

  • Multiple attempts made to reach individuals for recruitment and in case of no-show.

  • Reminder phone calls prior to appointment date; mailed reminders by request.

  • Interviews and focus groups: based on inclusion criteria, clerical staff called the patients at home and asked whether the patient was willing to participate in the study

  • Survey: all eligible patients who had been discharged from the hospital in the past week received a (paper & pencil) survey, with stamped return envelope. Patients were sent three reminders

Privacy and confidentiality issues
  • Written consent forms.

  • Separate video consent and release form with option to have face blurred.

  • Medical record data kept separate from personal identifiers.

  • Interviews and focus groups: clerical staff at the health insurance organization recruited the patients. Researchers only received an alias, and (if necessary for home interview) an address.

  • Surveys were completed anonymously

Data collection settings
  • Outpatient clinic or office

  • Patient's or family member's home.

  • Focus groups: in hospital and clinic meeting rooms

  • Interviews: at home and via phone

  • Survey: in home

Targets of data collected
  • Health: general and cardiovascular

  • Health behavior (self-care, adherence)

  • Personal routines, habits

  • Living situation, home and community environment

  • Barriers to self-care

  • Self-care resources, strategies

  • Demographics

  • Health

  • Health behavior (self-care)

  • Perceptions of case management

  • Perceptions of hospital stay

  • Demographics (survey only)

Participant incentives
  • Up to $65US mailed check.

  • Gift card in lieu of check, upon request.

• Focus group and interview participants received a $25 gift card; survey respondents did not receive an incentive.
Data capture • Audio-recording, video-recording (if permitted), and written notes
  • Observation (field) and debriefing notes

  • Audio-recordings

  • Paper-and-pencil surveys