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. Author manuscript; available in PMC: 2015 Mar 4.
Published in final edited form as: Chronic Illn. 2010 Mar;6(1):7–21. doi: 10.1177/1742395309352254

Table 1.

Comparison of Three Emerging Models for Programs to Increase Family Support for Patients with Chronic Illness

Family Members Set
Patient Support Goals
Family Training in Supportive
Communication Techniques
Two Subtypes
Clinical Care Support
Roles for Family
Behavioral or Illness Care Theory goal-achievement theory, motivational interviewing coping theory autonomy support draws on the Chronic Care Model of integrated care support
Most Appropriate Setting behavior change, especially for behaviors that affect the whole family ongoing symptoms or activity limitations change and maintenance of healthy behaviors during provider visits, between-visit clinical monitoring and care coordination
Example Patients in a self-management course set goals for behavior change during each week of the course. A participating family member selects a weekly concrete action that will help the patient achieve his or her goals. Family members practice prompting or suggesting symptom adaptation techniques Family members practice motivating and responding to patients facing challenging self-management situations without use of control or criticism A family member is trained in the proper technique for measuring blood pressure. He or she maintains a blood pressure log to bring to the patient’s provider during visits and advises the patient to call the provider if blood pressure rises above specific parameters.
Advantages Concrete goals make family roles clear Skills can be used in changing situations over time Potential to enhance the reach of and reduce inefficiencies in clinical care, potential to detect clinical changes earlier
Disadvantages Goal setting may not continue, Goal set for a specific situation may not help family increase support in other care domains Applies to limited patient situations, not ideal for supporting healthy behavior maintenance May be difficult or ineffective in families with underlying strained relationships. Potential for interference with patient-provider relationship, increased clinician burden.
Strength of evidence Mixed results for patients with rheumatologic disease, not evaluated in trials addressing other chronic illnesses Less pain and improved physical function in two arthritis studies, equivocal findings in a third Improved dietary adherence among heart failure patients in one study One pilot intervention to date, although observational evidence supports the benefits of family-centered clinical care.
Randomized controlled trials/pilot interventions underway Hyperlipidemia, Diabetes Two heart failure trials Heart failure, Diabetes