Table 1.
Family Members Set Patient Support Goals |
Family Training in Supportive Communication Techniques Two Subtypes |
Clinical Care Support Roles for Family |
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Behavioral or Illness Care Theory | goal-achievement theory, motivational interviewing | coping theory | autonomy support | draws on the Chronic Care Model of integrated care support |
Most Appropriate Setting | behavior change, especially for behaviors that affect the whole family | ongoing symptoms or activity limitations | change and maintenance of healthy behaviors | during provider visits, between-visit clinical monitoring and care coordination |
Example | Patients in a self-management course set goals for behavior change during each week of the course. A participating family member selects a weekly concrete action that will help the patient achieve his or her goals. | Family members practice prompting or suggesting symptom adaptation techniques | Family members practice motivating and responding to patients facing challenging self-management situations without use of control or criticism | A family member is trained in the proper technique for measuring blood pressure. He or she maintains a blood pressure log to bring to the patient’s provider during visits and advises the patient to call the provider if blood pressure rises above specific parameters. |
Advantages | Concrete goals make family roles clear | Skills can be used in changing situations over time | Potential to enhance the reach of and reduce inefficiencies in clinical care, potential to detect clinical changes earlier | |
Disadvantages | Goal setting may not continue, Goal set for a specific situation may not help family increase support in other care domains | Applies to limited patient situations, not ideal for supporting healthy behavior maintenance | May be difficult or ineffective in families with underlying strained relationships. | Potential for interference with patient-provider relationship, increased clinician burden. |
Strength of evidence | Mixed results for patients with rheumatologic disease, not evaluated in trials addressing other chronic illnesses | Less pain and improved physical function in two arthritis studies, equivocal findings in a third | Improved dietary adherence among heart failure patients in one study | One pilot intervention to date, although observational evidence supports the benefits of family-centered clinical care. |
Randomized controlled trials/pilot interventions underway | Hyperlipidemia, Diabetes | Two heart failure trials | Heart failure, Diabetes |