Appendix 1.
Discussion guide.
| Key questions | Item checklist | Further questions |
|---|---|---|
| 1. What is your experience with any forms of advance care planning for severely ill children and adolescents? | Starting point for discussions? | Can you specify? |
| Thematic issues, relevant situations? | Can you explain, justify? | |
| Participants? | What else comes in your mind? | |
| Roles | ||
| Initiator of discussions | And then? | |
| Involvement of minor patients | An example? | |
| Interprofessional communication? | In what sense? | |
| Current forms of pACP? | Why? | |
| Standards | ||
| Written advance directives, standard forms | ||
| Difficulties and barriers? | ||
| 2. What is your experience with written orders or advance directives in whose completion you have not been involved? | Acceptance? | |
| Benefits? | ||
| Difficulties? | ||
| 3. How should advance care planning ideally be conceptualized? | Starting point for discussions? | |
| Thematic issues, relevant situations? | ||
| Participants? | ||
| Roles | ||
| Involvement of minor patients | ||
| Requirements for written documents? | ||
| Content | ||
| Form | ||
| Signatures | ||
| Need for support? (e.g. trainings, workshops, guidelines) | ||
| Closing questions | ||
| Did we forget anything that you would like to address? | ||