Table 3.
Section | Purpose | Core(s) that Contributed to Design of Sectiona | Example Items |
---|---|---|---|
Introduction and Instructions | Provide an explanation of Region 3 GMaP/BMaP and the CAT. | Administrative Core | N/A |
Glossary | Provide definitions to terms used in CAT items that may be unfamiliar to the respondent. | Administrative Core | N/A |
Institution Characteristics | Assess the partnerships and communication strategies that each institution employs. | Communication/Dissemination Core; Administrative Core | What type of language accommodation is provided to enrolled participants? |
Research Regulatory Infrastructure | Address the research regulatory infrastructure at each institution which includes items on informed consent. | Ethical, Legal, and Policy Core | Does your institution have specific language that is mandatory to use in informed consent documents for biospecimen collection and biobanking? |
Research Studies/Clinical Trials | Address cancer-related research studies/clinical trials conducted at each institution. | Clinical Trials Core | What strategies does your institution use to promote recruitment and retention to cancer-related epidemiologic, observational, or outcomes trials among African Americans and Hispanics/Latinos? |
Biospecimen Donation and Biobanking: Collection, Processing, Storage and Analysis of Biospecimensb | Assess what types of biospecimens were stored; biobanking equipment available; personnel and administrative capacity; types of standard operating procedures; and other factors in biospecimen collection and biobanking. | Collection, Processing, Storage and Analysis of Biospecimens Core | Do you currently have an informatics system to collect and store data for your biospecimen collection? |
Biospecimen Donation and Biobanking: Ethical, Legal and Policy | Address ethical, legal, and policy issues as they relate to biospecimen donation and biobanking. | Ethical, Legal, and Policy Core | At your institution, is research being conducted that is designed specifically to evaluate the ethical aspects of biospecimen research? |
Biospecimen Donation and Biobanking: Community and Sociocultural Beliefs | Assess research involving community and socio-cultural beliefs in relation to biospecimen donation and biobanking. | Community and Sociocultural Beliefs; Communication/Dissemination Core | In what ways does your institution’s infrastructure address the inclusion of community and sociocultural beliefs in biospecimen/biobanking systems? |
Advanced and Emerging Technologies | Assess the advanced and emerging technology cores, resources, and its application to cancer health disparities research. | Advanced and Emerging Technologies Core | Is data analysis a barrier to the use of advanced and emerging technologies in general health disparities research at your institution? |
Biomedical Informatics | Address the biomedical informatics capacity at each institution that includes use of caBIG® modules. | Biomedical Informatics Core | Are inter-institutional agreements in place to allow or promote access to biomedical informatics resources? |
Training | Assess the training capacity at each institution and the level of involvement of partnerships in training. | Training Core | List funding sources and resources for current training programs and strengths and barriers to providing training in linguistic and cultural competence at your institution. |
Collaborative Research Grant Submissions | This section addresses research grants submitted in collaboration with other members of institutions in the Region 3 GMaP/BMaP network. | Administrative Core | Has your institution submitted research grants in collaboration with other members of institutions in the Region 3 GMaP/BMaP network in the past 5 years? |
The Evaluation/Needs Assessment Core contributed to the design of every section.
This section was divided into five sections for web-based completion. (I) Types of Biospecimens from Caucasian, African American and Hispanic/Latino Patients; (II) Equipment and Resources for Biospecimen Donation and Biobanking; (III) Personnel, Administrative Services, Procedures for Biobanking, Biospecimen Research, Data Elements and Training; (IV) Standard Operating Procedures; and (V) Outreach, Education, Biospecimen Core Committee and Financial Support.