Table 4.

Provision of information about important aspects of DMD care to different groups in the UK

	Adults not seen at specialized clinic (%)	Adults seen at specialized clinic (%)	Children seen at specialized clinic (%)
Respondents rating the provision of information as “sufficient” in each area
The course of the disease and the main problems that may arise	44.4	67.9	70.7
Treatment with steroids in DMD	25.0	58.6	78.9
Breathing problems in the course of DMD	44.4	85.2	46.4
Cardiac problems in DMD	33.3	69.0	56.6
Respondents who responded “no, not at all” in relation to information being provided on
The course of the disease and the main problems that may arise	44.4	3.6	4.8
Treatment with steroids in DMD	62.5	20.7	2.4
Breathing problems in the course of DMD	33.3	3.7	22.9
Cardiac problems in DMD	22.2	3.4	13.3