Table 1.
Participant Demographics
| Measure | n | % | Mean | SD |
|---|---|---|---|---|
| Gender | ||||
| Male | 16 | 47.1 | ||
| Female | 18 | 52.9 | ||
| Race | ||||
| Caucasian | 25 | 73.5 | ||
| African American | 7 | 20.6 | ||
| Asian | 2 | 5.9 | ||
| Age at study | 23.53 | 3.36 | ||
| Age at diagnosis | 7.36 | 4.64 | ||
| Diagnosis | ||||
| PNET | 11 | 32.4 | ||
| Low-grade astrocytoma | 10 | 29.4 | ||
| Low-grade glioma | 7 | 20.6 | ||
| Craniopharyngioma | 4 | 11.8 | ||
| Other | 2 | 5.8 | ||
| Tumor location | ||||
| Infratentorial | 17 | 50.0 | ||
| Cortex (supratentorial) | 9 | 26.5 | ||
| Midline (supratentorial) | 8 | 23.5 | ||
| Received radiation therapy | 17 | 50.0 | ||
| Treatment intensitya | ||||
| 1. Minimal—resection only | 9 | 26.5 | ||
| 2. Average—focal radiation±non-intensive chemotherapy | 13 | 38.2 | ||
| 3. Moderate—moderate chemotherapy±focal radiation, but no craniospinal radiation | 1 | 2.9 | ||
| 4. Intensive—craniospinal radiation±moderate non-intensive chemotherapy OR high-dose chemotherapy with stem cell rescue | 10 | 29.4 | ||
| 5. Most intensive—craniospinal radiation and intensive chemotherapy and stem cell rescue | 1 | 2.9 | ||
| Household income | ||||
| <$40,000 | 8 | 23.5 | ||
| $40,000–$100,000 | 11 | 32.4 | ||
| >$100,000 | 15 | 44.1 | ||
| Survivor employment | ||||
| Full-time | 8 | 23.5 | ||
| Part-time | 8 | 23.5 | ||
| Unemployed | 18 | 52.9 | ||
| Attending school | 9 | 26.5 | ||
| Federal financial support | 14 | 41.2 | ||
| Maternal demographics | ||||
| Age | 53.74 | 5.67 | ||
| Partnered relationship | 22 | 64.7 | ||
a
Based on the Intensity of Treatment Rating scale.
PNET, primitive neuroectodermal tumor; SD, standard deviation.