Table 3.
Domains Ratified During OMERACT 11 Proceedings - Forging Consensus Between Distinct Stakeholders with Special Considerations
| Domains from Combined Investigations | Special Considerations |
|---|---|
| DYSPNEA | Unexpected language and contextual factors Consider need for disease-specifics instrument development |
| COUGH | Pervasive impact on Dyspnea and HRQoL Core Set inclusion received 100% endorsement Consider need for disease-specific instrument development |
| HEALTH RELATED QUALITY of LIFE (also captures patient global assessment) |
Consider need for disease-specific instrument development HRQoL is impacted by uncertainty surrounding disease outcome HRQoL may be impacted by physician-patient communication |
| LUNG PHYSIOLOGY/FUNCTION | Patients and physicians care about this domain Patients are anxious about performance-related results (re: poor result of spirometry because of ‘effort’ or a ‘bad day’) |
| LUNG IMAGING | Patients and physicians care about this domain |
| SURVIVAL | Patients and physicians care about this domain Patients want to communicate about prognosis and handling episodic exacerbations |
| MEDICATIONS | Important to both stakeholder groups Incremental increase/decrease may be useful as a disease activity marker but depends on targeted therapy |