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. Author manuscript; available in PMC: 2015 Apr 1.
Published in final edited form as: J Rheumatol. 2014 Feb 1;41(4):792–798. doi: 10.3899/jrheum.131251

Table 3.

Domains Ratified During OMERACT 11 Proceedings - Forging Consensus Between Distinct Stakeholders with Special Considerations

Domains from Combined Investigations Special Considerations
DYSPNEA Unexpected language and contextual factors
Consider need for disease-specifics instrument development
COUGH Pervasive impact on Dyspnea and HRQoL
Core Set inclusion received 100% endorsement
Consider need for disease-specific instrument development
HEALTH RELATED QUALITY of LIFE
(also captures patient global assessment)
Consider need for disease-specific instrument development
HRQoL is impacted by uncertainty surrounding disease outcome
HRQoL may be impacted by physician-patient communication
LUNG PHYSIOLOGY/FUNCTION Patients and physicians care about this domain
Patients are anxious about performance-related results (re: poor result of spirometry because of ‘effort’ or a ‘bad day’)
LUNG IMAGING Patients and physicians care about this domain
SURVIVAL Patients and physicians care about this domain
Patients want to communicate about prognosis and handling episodic exacerbations
MEDICATIONS Important to both stakeholder groups
Incremental increase/decrease may be useful as a disease activity marker but depends on targeted therapy