Table 1.
Characteristics of patients with DMD and BMD and their parents.
| DMD (N = 246) | BMD (N = 90) | |
|---|---|---|
| Patients | ||
| Age, mean (SD) years | 10.0 (3.7) | 11.9 (3.6) |
| School attendance, N (%) yes | 233 (94.7) | 89 (98.9) |
| Minor healthy siblings, N (%) yes | 134 (54.5) | 45 (50.0) |
| Age of older healthy sibling, mean (SD) years | 9.6 (4.4) | 9.5 (4.7) |
| Duration of symptoms, mean (SD) years | 6.8 (3.9) | 7.5 (4.1) |
| BI, mean (SD)* | 65.6 (28.0) | 95.4 (11.3) |
| Parents | ||
| Mothers, N (%) | 205 (83.3) | 78 (86.7) |
| Fathers, N (%) | 41 (16.7) | 12 (13.3) |
| Age, mean (SD) years | 41.2 (6.2) | 43.3 (6.6) |
| Marital status, cohabitant/spouse N (%) | 217 (88.2) | 80 (88.9) |
| Education, N (%) Primary school Secondary school High school University |
11 (4.5) 89 (36.2) 119 (48.4) 27 (10.9) |
3 (3.3) 37 (41.1) 39 (43.3) 11 (11.2) |
| Currently employed, N (%) yes | 133 (54.1) | 55 (61.1) |
| Daily hours in patient's caregiving , mean (SD)* | 6.3 (4.1) | 3.3 (2.7) |
DMD = Duchenne Muscular Dystrophy; BMD = Becker Muscular Dystrophy; differences between the two groups explored by X or ANOVA test
*
p < .05 with Bonferroni correction