Table 2.
Psychological difficulties in DMD vs. BMD groups (N = 246 vs. N = 90).
| Items – section a of FPQ | MD Type | Always N (%) | Often N (%) | SometimesN (%) | Never N (%) | Mean (SD) | χ2 | MissingN |
|---|---|---|---|---|---|---|---|---|
| I felt that I would not be able to bear this situation much longer | DMD | 8 (3.2) | 35 (14.3) | 103 (42.0) | 99 (40.4) | 1.8 (.0) | 1 | |
| BMD | 2 (2.2) | 4 ( 4.5) | 21 (23.6) | 62 (69.7) | 1.4 (.7) | 23.2* | 1 | |
| I cried or felt depressed | DMD | 7 (2.8) | 59 (24.0) | 130 (52.8) | 50 (20.3) | 2.1 (.7) | 0 | |
| BMD | 4 (4.5) | 8 (9.0) | 49 (55.1) | 28 (31.5) | 1.9 (.7) | 11.4 | 1 | |
| I worry for the future of other family members | DMD | 21 (8.6) | 41 (16.8) | 119 (48.8) | 63 (25.8) | 2.1 (.9) | 2 | |
| BMD | 3 (3.3) | 11 (12.2) | 45 (50.0) | 31 (34.4) | 1.8 (.8) | 5.2 | 0 | |
| When I went to a public place with my ill relative, I felt that everyone was watching us | DMD | 19 (7.9) | 20 (8.3) | 68 (28.1) | 135 (55.8) | 1.7 (.9) | 4 | |
| BMD | 1 (1.1) | 0 | 4 (4.4) | 85 (94.4) | 1.1 (.9) | 44.1* | 0 | |
| I feel guilty because I believe that I or my spouse may have passed on the illness to our relative | DMD | 19 (7.8) | 30 (12.2) | 80 (32.7) | 116 (47.3) | 1.8 (.9) | 1 | |
| BMD | 15 (17.0) | 18 (20.5) | 29 (33.0) | 26 (29.5) | 2.2 (1.1) | 13.3 | 2 | |
| I think that if our relative didn't have this problem, everything would be all right in our family | DMD | 39 (16.0) | 32 (13.1) | 64 (26.2) | 109 (44.7) | 2.0 (1.1) | 2 | |
| BMD | 4 (4.5) | 3 (5.6) | 17 (19.1) | 63 (70.8) | 1.4 (.8) | 19.9* | 3 | |
| When I think of how our ill relative was beforehand and how he/she is now, I feel disappointed | DMD | 75 (31.0) | 50 (20.7) | 79 (32.6) | 38 (15.7) | 2.7 (1.1) | 3 | |
| BMD | 12 (13.8) | 11 (12.6) | 27 (31.0) | 37 (42.5) | 2.0 (1.0) | 29.6* | 3 |
DMD = Duchenne Muscular Dystrophy; BMD = Becker Muscular Dystrophy;
*
p < .05 with Bonferroni correction