Table 4.
Difficulties in healthy siblings as perceived by parents (N = 134 DMD vs. N = 45 BMD).
Items – additional section of FPQ | MD Type | Always N (%) | Often N (%) | SometimesN (%) | Never N (%) | Mean (SD) | χ2 | MissingN |
---|---|---|---|---|---|---|---|---|
I feel that the presence of S affects negatively the psychological well-being of my children (e.g., I see them crying, being fearful, aggressive, shy) | DMD | 2 (1.5) | 6 (4.5) | 33 (25.0) | 91 (68.9) | 1.4 (.6) | 2 | |
BMD | 1 (2.6) | 0 | 4 (10.3) | 34 (87.2) | 1.2 (.5) | 6.3 | 6 | |
I feel that the presence of S affects negatively the social life of my children (school performance, leisure activities, etc.) | DMD | 3 (2.3) | 5 (3.8) | 26 (19.7) | 98 (74.2) | 1.3 (.7) | 2 | |
BMD | 0 | 0 | 7 (18.4) | 31 (81.6) | 1.2 (.4) | 2.5 | 7 |
DMD = Duchenne Muscular Dystrophy; BMD = Becker Muscular Dystrophy