Table 1.
Characteristics of the persons with lupus.
| Characteristics | n (%)a or mean (SD) | ||
| Consumers and relatives contacted | 3119 | ||
| Consumer responders (≥18 years) | 665 (21.3) | ||
| Age (n=594), mean (SD) | 46.8 (12.7) | ||
| Sex, n (percent female) (n=662) | 612 (92.4) | ||
| Ethnic origin, n (percent Caucasian) (n=665) | 527 (79.2) | ||
| Marital status (n=664) |
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Married and/or cohabiting | 407 (61.3) | |
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Single | 157 (23.6) | |
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Divorced | 83 (12.5) | |
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Widowed | 17 (2.5) | |
| Education (n=615) |
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High school or less | 138 (22.4) | |
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College/university | 400 (65.0) | |
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Post-graduate/professional degree | 77 (12.5) | |
| Employment (n=660) |
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Employed | 388 (58.8) | |
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Full-time | 288 (43.6) |
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Part-time | 100 (15.2) |
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Part-time due to SLE | 60 (9.1) |
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Temporarily not employed | 25 (3.8) | |
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Temporarily not employed due to SLE b | 16 (2.4) | |
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Not employed | 247 (37.4) | |
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Not employed due to SLEb | 175 (26.5) |
| Percent with access to the Web (n=650) | 644 (99.1) | ||
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Work | 306 (47.1) | |
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Home | 598 (92.0) | |
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Library | 58 (8.9) | |
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Other | 44 (6.8) | |
| Device used to access the Web (n=641) |
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Personal computer | 548 (85.5) | |
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iPhone or other smartphone | 93 (14.5) | |
| Web usage for information about SLE b (n=641) |
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<1 h/wk | 397 (61.9) | |
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1-5 h/wk | 179 (27.9) | |
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6-10 h/wk | 33 (5.1) | |
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>10 h/wk | 32 (5.0) | |
aTo adjust for missing values, percentages were calculated using non-missing values
bSLE: Systemic Lupus Erythematosus