Table 3.
Percentage reporting individual information topics as important.a
|
|
|
Persons with lupus | Rheumatologists | AHPs |
| Dealing with fatigue |
|
91.3 | 84.8 | 93.2 |
| Understanding lupus, the disease |
|
90.9 | 86.1 | 91.4 |
| Understanding effects of stress on lupus |
|
90.9 | 78.9 | 84.7 |
| Medications used in lupus |
|
88.7 | 92.4 | 87.9 |
| Practical lifestyle options for living with lupus |
|
86.4 | N/Ac | N/A |
| Managing sleep disturbances |
|
85.1 | N/A | N/A |
| Diet and exercise recommendations b |
|
83.4 |
|
|
|
|
Diet recommendations |
|
53.1 | 58.6 |
|
|
Exercise recommendations | 61.5 | 77.6 | |
| Coping with arthritis |
|
81.3 | N/A | N/A |
| Avoiding kidney disease |
|
81.2 | N/A | N/A |
| Pain management |
|
80.2 | 65.8 | 89.8 |
| Decision-making information |
|
74.7 | N/A | N/A |
| Addressing depression |
|
73.2 | 69.2 | 89.8 |
| Managing skin rashes |
|
69.8 | 69.6 | 71.1 |
| Improving communication with the health care team |
|
68.8 | 64.6 | 66.1 |
| Complementary and alternative methods |
|
68.7 | 38.5 | 32.8 |
| Knowing where to get disability insurance |
|
55.0 | 50.0 | 48.3 |
| Access to psychosocial resources |
|
52.6 | 79.7 | 86.4 |
| Employment counseling services |
|
41.8 | 48.1 | 64.4 |
aPercentages are for ratings ≥7 in terms of importance (1=least important; 10=most important)
bDiet and exercise recommendations were combined in the survey for persons with lupus
cN/A=Not Asked