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. 2014 Dec 22;3(4):e65. doi: 10.2196/resprot.3349

Table 3.

Percentage reporting individual information topics as important.a



Persons with lupus Rheumatologists AHPs
Dealing with fatigue
91.3 84.8 93.2
Understanding lupus, the disease
90.9 86.1 91.4
Understanding effects of stress on lupus
90.9 78.9 84.7
Medications used in lupus
88.7 92.4 87.9
Practical lifestyle options for living with lupus
86.4 N/Ac N/A
Managing sleep disturbances
85.1 N/A N/A
Diet and exercise recommendations b
83.4


Diet recommendations
53.1 58.6

Exercise recommendations 61.5 77.6
Coping with arthritis
81.3 N/A N/A
Avoiding kidney disease
81.2 N/A N/A
Pain management
80.2 65.8 89.8
Decision-making information
74.7 N/A N/A
Addressing depression
73.2 69.2 89.8
Managing skin rashes
69.8 69.6 71.1
Improving communication with the health care team
68.8 64.6 66.1
Complementary and alternative methods
68.7 38.5 32.8
Knowing where to get disability insurance
55.0 50.0 48.3
Access to psychosocial resources
52.6 79.7 86.4
Employment counseling services
41.8 48.1 64.4

aPercentages are for ratings ≥7 in terms of importance (1=least important; 10=most important)

bDiet and exercise recommendations were combined in the survey for persons with lupus

cN/A=Not Asked