Table 1.

Data elements sought

Category	Data elements
Basic registry information	Region, acronym, full name, website, country, year established, year of latest annual report, address, telephone/fax numbers, email, Chairperson, Director, history, current status (active or inactive), patient group, inclusion of pediatric data, geographical reach, use of quality control measures, inclusion of incident and/or prevalent patients, use of special inclusion sampling, inclusion of transplant and/or dialysis patients
Aggregate data	Availability, how to access, who can access, cost to access
Individual patient data	Availability, how to access, who can access, cost to access
Data source	Sector (public or private), RRT service provider, method of patient recruitment, means by which patients exit registry
Patient characteristics	Age, gender, race, ethnicity, body mass index, duration of ESRD, level of education, employment status, insurance
Comorbidities	Whether reported, specific comorbidities assessed
Treatment characteristics	Modality and submodality, dialysis-product information, dose of dialysis, vascular access method, if RRT initiation was unplanned or planned, if start date reported, length of time on dialysis, treatment costs, funding source
Outcomes	Laboratory results, quality of life (scale/instrument used), peritonitis rate, infection rate, other adverse events reported, survival data/all-cause mortality rates, renal failure-related mortality rates, any additional outcomes collected
ESRD, end-stage renal disease; RRT, renal replacement therapy