Table 3.
Content analysis of questionnaire free text data
| Theme | Number of comments | Positive | Negative | Examples |
|---|---|---|---|---|
| Expertise/Professionalism | 23 | 23 | 0 | • We felt very lucky to have been referred and have the opportunity to talk with a panel of consultants |
| • It was fantastic to feel we had the best of advice in all areas and that a specialist from all areas was there | ||||
| • Three consultants were extremely well informed and we found their opinion and level of expertise both beneficial and reassuring | ||||
| Information/understanding | 20 | 18 | 2 | • If we had any questions or didn’t understand they clarified things |
| • It enabled me to understand the condition of my kidneys and to accept the problems I might be facing | ||||
| • I decided not to go through with it and I’m not sure that’s right | ||||
| Access to services | 13 | 11 | 2 | • It felt like it took a long time to reach the right people |
| • Letter was useful with both pregnancies at local hospital | ||||
| Decision-making | 12 | 10 | 2 | • It is an important decision and it was – and still is – very reassuring to know that the decision we took was with the best information |
| • If it had not been for the clinic and reassurance from consultants that it was safe to fall pregnant we probably would not have tried | ||||
| Emotional response | 9 | 4 | 5 | • I found this quite stressful and frightening |
| • The risks scared me so much | ||||
| • It made me feel safe | ||||
| Individualised care | 7 | 5 | 2 | • I have other medical problems as well and the doctors were able to give me some very informed advice |
| • All concerns were taken seriously | ||||
| • My thoughts and view were not taken into consideration |