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. Author manuscript; available in PMC: 2016 Jan 1.
Published in final edited form as: J Pediatr. 2014 Oct 8;166(1):119–124. doi: 10.1016/j.jpeds.2014.09.006

Table 3.

Crude associations between congenital heart disease, neurodevelopmental outcomes, and healthcare utilization children 0–17 years in the Unites States, 1997–2011*

Variable CHD
374 (%)
No CHD
158,243(%)
Odds Ratio
(95% CI)
Neurodevelopmental Outcomes and Healthcare Utilization in children 2–17 years
Autism/ASD
  No 368 (97.4) 157,360 (99.4) 4.6 (1.9–11.0)
  Yes 6 (2.6) 883 (0.6)
ADHD or ADD
  No 329 (89.7) 147,983 (93.4) 1.6 (1.1–2.4)
  Yes 44 (10.3) 9,942 (6.6)
Been told SC had intellectual disability
  No 351 (94.7) 157,146 (99.4) 9.1 (5.4–15.4)
  Yes 23 (5.3) 981 (0.6)
Seen or talked to a mental health professional in last 12 months
  No 317 (85.5) 147,749 (93.5) 2.5 (1.6–3.7)
  Yes 54 (14.5) 9,834 (6.5)
Seen a physical, speech, respiratory, occupational therapist or audiologist in last 12 months
  No 292 (78.4) 148,907 (94.0) 4.3 (3.2–5.9)
  Yes 79 (21.6) 8,657 (6.0)
Learning disability**
  No 271 (79.1) 136,579 (92.4) 3.8 (2.9–5.2)
  Yes 77 (20.9) 10,875 (7.6)

Healthcare Utilization for Children 0–17
CHD
420 (%)
No CHD
158,243(%)
Odds Ratio
(95% CI)
There is a usual place you go to when child is sick
  Yes 400 (96.0) 167,946 (94.3) 0.7 (0.4–1.2)
  No 20 (4.0) 11,777 (5.7)
Has healthcare provider changed in last 12 months
  No 374 (92.0) 154,255 (91.6) 0.9 (0.6–1.4)
  Yes 31 (8.0) 14,203 (8.4)
    Not due to changes in health insurance 23 (82.0) 9,788 (70.6) 0.5 (0.2–1.2)
    Due to changes in health insurance 8 (18.0) 4,401 (29.4)
Has child seen a medical doctor who treats a variety of illnesses^ in last 12 months
  No 52 (12.0) 38,203 (20.2) 1.9 (1.3–2.7)
  Yes 364 (88.0) 140,922 (79.8)
Has child received a well-child checkup in last 12 months
  No 75 (22.6) 36,363 (25.7) 1.2 (0.9–1.6)
  Yes 245 (77.4) 101,699 (74.3)
Has child gone to an ER in last 12 months
  No 277 (68.4) 141,329 (79.5) 1.8 (1.4–2.4)
  Yes 136 (31.6) 37,762 (20.5)
    1–5 time 122 (90.6) 36,909 (97.8) 4.7 (2.1–10.4)
    >5 times 14 (9.4) 854 (2.2)
Did child receive care at home in last 12 months
  No 397 (95.1) 177,823 (99.1) 5.7 (3.3–9.7)
  Yes 20 (4.9) 1,588 (0.9)
    1–5 times 3 (20.6) 690 (58.1) 5.3 (1.3–22.6)
    >5 times 12 (79.4) 473 (41.9)
Has child seen a health care professional in doctor’s office or clinic in last 12 months
  No 18 (4.0) 21,744 (11.6) 3.2 (1.7–6.0)
  Yes 398 (96.0) 156,057 (88.4)
    1–5 times 253 (64.8) 130,971 (83.9) 2.8 (2.2–3.7)
    >5 times 145 (35.2) 25,086 (16.1)
Time since child last saw or talked to a doctor or other healthcare provider
  ≥6 months 56 (10.9) 43,407 (24.4) 2.6 (1.8–3.8)
  <6 months 360 (89.1) 134,800 (75.6)
*

Data source: CDC/NCHS, National Health Interview Survey

**

only asked of those 3–17 years of age

^

Pediatrics, family or internal medicine physicians

CHD: congenital heart disease; ASD: autism spectrum disorders; ADHD: attention-deficit/hyperactivity disorder; ADD: attention-deficit disorder; SC: sample child; ER: emergency room; CI: confidence interval; CDC: Center for Disease Control and Prevention; NCHS: National Center for Health Statistics