| 1.Sahota P et al 2012 [28] |
One US center's stroke registry. |
Safety of Intravenous Mononuclear cells for Acute Stroke
(SIMVAS) |
Using the registry to recruit patients with acute ischemic
stroke for pilot study. |
Identified 534 Eligible 25 (4.7% of identified)
Enrolled 10 |
| 2. Aung T et al 2011 [27] |
Centrally held registers and local GP registers in UK |
A Study of Cardiovascular Events iN Diabetes (ASCEND) |
Determine whether 100 mg aspirin daily vs placebo and/or 1
gm omega 3 fatty acids daily vs placebo prevents “serious vascular
events”. |
Invited 423,286 Eligible 26480 (6.3% of
identified) Enrolled 15,481 |
| 3. Rawlings J et al 2011 [23] |
St Marks Hospital's Polyposis Registry, Middlesex,
UK |
Trial in children with familial adenomatous polyposis
(CHIP) |
Study effect of Celecoxib vs placebo in children at risk
for polyposis |
Eligible 29 Interested 22 |
| 4. Kinney A et al 2012 [24] |
Five population- based cancer registries in US. |
Family CARE Trial for colorectal cancer |
Recruit family members of probands with colorectal cancer
for screening. |
Identified 3893 Eligible 715 (18.4% of identified)
Responded 48 |
| 5. Ashing- Giwa K, Rosales M 2012 [17] |
California cancer registry, local hospital registries |
Longitudinal study on health related quality of life
(HRQOL) in breast cancer survivors. |
Recruitment and retention strategies of minority breast
cancer survivors in psycho-oncology trial. |
Eligible 587 Enrolled 375 |
| 6. Parikh PS et al 2010 [29] |
Severe Asthma Research Program Network Registry |
A phase II clinical trial in asthma at Cleveland
Clinic |
Compare recruitment using electronic medical record and a
registry. |
Eligible 109 Interested 41 Enrolled 11 |
| 7. Puppa EL et al 2012 [30] |
One Center's Celiac disease clinic registry |
No specific clinical trials identified |
Establish a research registry for celiac disease
patients. |
Eligible 780 Enrolled 136 |
| 8. Harris P et al 2010 [9] |
ResearchMatch- a national electronic recruitment
website |
Disease-neutral clinical trials by investigators in CTSA
consortium |
Describe the development of this national electronic
register who are interested in clinical trials conducted by investigators from CTSA
consortium |
No details |
| 9. Sullivan FM et al 2011 [32] |
Scottish Health Research Register |
No specific clinical trials identified |
Describe the development and utilization of SHARE which
has a million people |
No details |
| 10. Astigarraga A et al 2011 [22] |
National registry of histiocytosis patients in Spain |
Intervention trials in patients with histiocytosis |
Describe the number of hospitals and protocols in national
and international histiocytosis trials |
No details |
| 11. Atreja A et al 2010 [33] |
Cleveland Clinic registry for Trial X |
Disease-neutral clinical trials registry matching patients
with investigators for Trial X initiative of CTSA consortium |
Describe an electronic register of patients interested in
clinical trials and matching them with investigators. |
No details |
