Table 5.
Disease burden
(number of respondents) |
|
---|---|
Pattern of abdominal
pain (59) |
n (%) |
Usually pain free, with episodes of mild to moderate pain |
10 (17%) |
Usually pain free, with episodes of severe pain |
21 (36%) |
Constant mild to moderate pain |
2 (3%) |
Constant mild to moderate pain, plus episodes of severe pain |
22 (37%) |
Constant severe pain | 4 (7%) |
Mean pain scores
(scale 0-100) |
median (25th and 75th
percentile) |
Constant pain (15) | 55 (30, 78) |
Episodic pain (50) | 80 (62, 94) |
Number of |
median (25th and 75th
percentile) |
ER visits lifelong (48) | 5 (3, 14) |
ER visits last year (47) | 3 (1, 5) |
Hospitalizations lifelong (52) |
5.5 (2.5, 14.5) |
Hospitalizations last year (48) |
2 (1, 3) |
Days of school missed past 1 month (47) |
3 (0, 8) |
*
Pancreatic
insufficiency (55) |
n (%) |
Exocrine insufficient | 19 (34%) |
Endocrine insufficient& | 1 (1%) |
Excludes post-total pancreatectomy;
1 patient with diabetes prior to total pancreatectomy.