Table 1.
Content of consultations between clinicians and service users/carers
| Item | Clinician mentioned | Service user mentioned in consultation to researcher | Carer mentioned in consultation to researcher |
|---|---|---|---|
| (total potential n = 26) | (total potential n = 26) | (total potential n = 20) | |
| Having an (electronic) health record | 11 | 0 | 0 |
| Benefits of research | 22 | 0 | 0 |
| Types of research | 4 | 0 | 0 |
| Personalised example of research | 13 | 0 | 3 |
| Researchers have been ‘approved’ (by regulatory bodies) | 2 | 0 | 0 |
| Researchers’ confidentiality | 17 | 1 | 0 |
| Researchers will identify you from the EHR | 12 | 0 | 4 |
| Researchers may contact you in future | 22 | 4 | 7 |
| C4C is voluntary | 12 | 0 | 4 |
| Future studies are voluntary a | 15 | 0 | 5 |
| Service user/carer can un-join the register (change their mind) a | 10 | 3 | 3 |
| Decision will not affect care | 4 | 1 | 2 |
| Can agree contact arrangements; that is, what/when/how contacted b | 8 | 2 | 3 |
| Ask whether they wish to join the register | 22 | 6 | 4 |
| Questions and concerns | 14 | 1 | 0 |
| Who to contact for further information | 5 | 2 | 5 |
C4C, Consent for Contact; EHR, Electronic Health Record. Bold data are significant. aMarked a significant difference from whether younger adults joined a similar register. bMarked a significant difference from whether younger adults and older adults joined the register.