Table 3.
Demographic and Medical Data for Survivors (n = 186)
| Characteristic | Frequency | Percent |
|---|---|---|
| Survivor education and work (n = 1 missing) | ||
| No school or work | 33 | 17.70 |
| School | 74 | 39.80 |
| Work with or without school | 78 | 41.90 |
| Survivor age in years | ||
| 14–19 | 82 | 44.1 |
| 20–24 | 73 | 39.2 |
| 25–29 | 19 | 10.2 |
| 30–39 | 12 | 6.5 |
| Treatment intensity | ||
| 1. Resection only | 62 | 33.30 |
| 2. Focal radiation ± non-intensive chemotherapy | 55 | 29.60 |
| 3. Moderate chemotherapy ± focal radiation, but no CSI | 19 | 10.20 |
| 4. Craniospinal radiation ± moderate/non-intensive chemotherapy or intensive chemotherapy and stem cell rescue | 45 | 24.20 |
| 5. Craniospinal radiation and intensive chemotherapy and stem cell rescue | 5 | 2.70 |
| Medical sequelae | ||
| 1. Minimal to no limitation in activity | 31 | 16.70 |
| 2. Mild restriction of daily activity | 48 | 25.80 |
| 3. Moderate restriction of daily activity | 89 | 47.90 |
| 4. Severe restriction of daily activity; life threatening | 18 | 9.70 |
| Tumor locations | ||
| Posterior fossa/cerebellar | 94 | 50.54 |
| Cortical/subcortical: all lobes | 33 | 17.74 |
| Suprasellar/hypothalamic (included pituitary) | 29 | 15.59 |
| Pineal | 7 | 3.76 |
| Thalamic/basal ganglia | 6 | 3.23 |
| Ventricle (supratentorial) | 6 | 3.23 |
| Brain stem (tectal) | 5 | 2.69 |
| Optic nerve/chiasm | 4 | 2.15 |
| Brain NOS | 2 | 1.08 |
| Diagnoses | ||
| Low grade glioma | 94 | 50.54 |
| Primitive neuroectodermal tumors (PNET)/medulloblastoma | 51 | 27.42 |
| Craniopharyngioma | 14 | 7.53 |
| High grade glioma | 7 | 3.76 |
| Ependymoma | 5 | 2.69 |
| Germinoma & nongerminoma germ cell | 5 | 2.69 |
| Choroid Plexus | 4 | 2.15 |
| Others | 6 | 3.23 |