Table 2.
Themes and subthemes | Mayo Clinic focus groups
|
Hennepin County Medical Center focus groups
|
||
---|---|---|---|---|
Group 1 (n=5) | Group 2 (n=7) | Group 3 (n=8) | Group 4 (n=5) | |
Theme 1: work patients must do to care for their health | x | x | x | x |
– Learn about conditions and care | x | x | x | x |
– Taking medications | x | x | x | x |
– Medical appointments | x | x | x | x |
– Monitoring health | x | x | x | x |
– Health behaviors | x | x | x | x |
– Medical equipment/devices | x | |||
Theme 2: challenges/stressors that exacerbate felt burden | x | x | x | x |
– Challenges with taking medication | x | x | x | x |
– Interpersonal challenges | x | x | x | x |
– Financial challenges | x | x | x | x |
– Confusion about medical information | x | x | x | x |
– Barriers to self-care | x | x | x | x |
– Health care provider obstacles (individual provider) | x | x | x | x |
– Health care provider obstacles (system issues) | x | x | x | x |
Theme 3: impacts of burden | x | x | x | x |
– Role/social activity limitations | x | x | x | x |
– Physical/mental exhaustion of self-care | x | x | x | x |
Note: x indicates theme observed.