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. Author manuscript; available in PMC: 2015 Aug 1.
Published in final edited form as: J Stroke Cerebrovasc Dis. 2014 Jun 21;23(7):1753–1763. doi: 10.1016/j.jstrokecerebrovasdis.2014.02.017

Table 2. Data sources used in the literature of indirect costs of stroke, 1990-2012.

Country/References Prevalence/incidence Productivity loss and informal care cost
US9, 16, 17, 20-22

  • 2000 US Census

  • NOMASS: Northern Manhattan Stroke Study

  • BASIC: Brain Attack Surveillance in Corpus Christi

  • NHANES: National Health and Nutrition Examination Survey

  • National Hospital Discharge Survey

  • AHEAD: The Asset and Health Dynamics

  • BLS: Bureau of Labor Statistics

  • NMES: National Medical Expenditure Survey

  • MEPS: Medical Expenditure Panel Survey

  • CMS: Centers for Medicare & Medicaid Services

  • Current Population Survey

  • National Vital Statistics

  • California State Department of Health Services (Health Demographics)
Canada23

  • National vital statistics data

  • 1990 OHS (Ontario Health Survey)

  • Statistics Canada Survey Data
Germany24-26

  • Hospital data (Department of Neurosurgery and Neuroradiology at the University of Bonn)

  • German Stroke Data Bank

  • German version of the National Institutes of Health Stroke Scale

  • Hospital-based health economic questionnaires (Department of Neurosurgery and Neuroradiology at the University of Bonn)

  • Federal Statistics

  • German Stroke Data Bank
Ireland27

  • NDPSS: North Dublin Population Stroke Study

  • National Employment Survey 2007–2009

  • Census of Population

  • SHARE: The Survey of Health, Ageing and Retirement in Europe

  • INASC: Irish National Audit of Stroke Care
Italy28, 29

  • EcLIPSE: Economic Longitudinal Incidence-based Project for Stroke Evaluation Study

  • EcLIPSE
Netherlands14, 30

  • EDISS: Evaluation of Dutch Integrated Stroke Service Experiments

  • Mortality registration data

  • Chronicle of social insurance

  • EDISS
Spain 31, 32

  • Hospital data from 28 hospitals in Andalusia and five hospitals in Canary Islands

  • 2004 Wage Structure Survey of the Spanish National Statistics Institute

  • Hospital-based stroke survivor questionnaires from five hospitals in the Canary Islands
Sweden18, 33-36

  • Local and national clinical registers

  • Hospital data from the department of medicine at Sodertalje Hospital

  • Social insurance authority

  • The Stroke Register

  • Socialforsakringsstatistik 1973–1991

  • Den ersatta sjukfranvarons diagnoser 1983 (vol. 8)

  • Local insurance office in Sodertalje
UK37, 38

  • WHOSIS: World Health Organization Statistical Information System

  • ONS: Office of National Statistics

  • SLSR: South London Stroke Register

  • Department for Work and Pensions

  • The General Household Survey
Australia 10, 40, 41

  • NEMESIS: North East Melbourne Stroke Incidence Study

  • MORUCOS: Model of Resource Utilization, Costs, and Outcomes for Stroke

  • NEMESIS
New Zealand42

  • New Zealand hospital admission data

  • Information Network for Official Statistics (INFOS): Online computerized official statistics for New Zealand
Thailand19

  • Hospital data from Sirindhorn National Medical Rehabilitation Center (SNMRC) and Buriam Hospital

  • Hospital-based survey data from SNMRC and Buriam Hospital

Notes: When a data source is previous literature, we did not include it as a data source in this table. UK: United Kingdom; US: United States.