Table II.
Characteristics of the 62 patients who returned the questionnaire.
| Total respondents to the questionnaire [N=62] | Willing to participate in a clinical trial [n=51] | Not willing to participate in a clinical trial [n=11] | p | |
|---|---|---|---|---|
|
|
||||
| n (%) or mean±SD | n (%) or mean±SD | n (%) or mean±SD | ||
| Type of haemophilia | 0.674 | |||
| Haemophilia A | 52 (83.9) | 42 (82.4) | 10 (90.9) | |
| Haemophilia B | 10 (16.1) | 9 (17.6) | 1 (9.1) | |
|
| ||||
| Haemophilia severity | 0.733 | |||
| Severe | 35 (56.5) | 30 (58.8) | 5 (45.4) | |
| Moderate | 11 (17.7) | 9 (17.7) | 2 (18.2) | |
| Mild | 16 (25.8) | 12 (23.5) | 4 (36.4) | |
|
| ||||
| Treatment regimen | 0.569 | |||
| Prophylaxis | 29 (46.8) | 23 (45.1) | 6 (54.5) | |
| On-demand | 33 (53.2) | 28 (54.9) | 5 (45.5) | |
|
| ||||
| Age, years | 47.5±14.6 | 45.3±14.0 | 57.6±13.9 | 0.017 |
|
| ||||
| Educational level* | 0.239 | |||
| Did not graduate from high school | 10 (16.4) | 6 (12.0) | 4 (36.4) | |
| High school graduate | 15 (24.6) | 12 (24.0) | 3 (27.3) | |
| Some college or 3-year degree | 15 (24.6) | 13 (26.0) | 2 (18.2) | |
| College graduate | 21 (34.4) | 19 (38.0) | 2 (18.2) | |
|
| ||||
| Family context* | 0.404 | |||
| Single | 14 (23.0) | 12 (23.5) | 2 (18.2) | |
| Couple | 45 (73.7) | 37 (72.5) | 8 (72.7) | |
| Widower | 2 (3.3) | 1 (2.0) | 1 (9.1) | |
|
| ||||
| Having daughters** | 0.739 | |||
| No | 30 (50.0) | 24 (49.0) | 6 (54.5) | |
| Yes | 30 (50.0) | 25 (51.0) | 5 (45.5) | |
|
| ||||
| Having sons** | 0.317 | |||
| No | 30 (50.0) | 26 (53.1) | 4 (36.4) | |
| Yes | 30 (50.0) | 23 (46.9) | 7 (63.6) | |
|
| ||||
| Notebook for injections** | ||||
| No | 21 (35.0) | 18 (36.7) | 3 (27.3) | 0.731 |
| Yes | 39 (65.0) | 31 (63.3) | 8 (72.7) | |
*
1 missing value (1.6%);
**
2 missing values (3.2%);
p: p value for the comparison of patients’ characteristics between patients who declared a certain willingness to participate in a clinical trial and patients who were not willing to do so; SD: standard deviation.