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. 2015 May;105(5):900–908. doi: 10.2105/AJPH.2014.302403

TABLE 1—

Attributes of Ethical Community-Engaged Research

Total (n = 29) Community (n = 14) Academic (n = 15)
There is protection and fair treatment of enrolled participants and their data; enrolled participants are not harmed 22 8 14
The study results in community or policy benefit 14 6 8
The study is IRB, HIPAA, and Belmont compliant 11 4 7
There are appropriate informed consent procedures 8 3 5
Research team practices transparency 6 0 6
Research team practices respect 6 5 1
Research team practices trust or honesty and is personally ethical 5 4 1
Research protocols are sensitive to participants, not stigmatizing, and culturally appropriate 5 4 1
The benefits to enrolled participants outweigh the risks 4 1 3
Protocols are scientifically rigorous, valid, and objective 4 0 4
Study protocols are adhered to 4 3 1
The research aim is important to the community 4 3 1
The study is community partnered or engaged 4 2 2

Note. IRB = institutional review board; HIPAA = Health Insurance Portability and Accountability Act. The table shows the responses to interview question 1: “What does it mean to you to say that you are doing ethical research?”