TABLE 1—
Total (n = 29) | Community (n = 14) | Academic (n = 15) | |
There is protection and fair treatment of enrolled participants and their data; enrolled participants are not harmed | 22 | 8 | 14 |
The study results in community or policy benefit | 14 | 6 | 8 |
The study is IRB, HIPAA, and Belmont compliant | 11 | 4 | 7 |
There are appropriate informed consent procedures | 8 | 3 | 5 |
Research team practices transparency | 6 | 0 | 6 |
Research team practices respect | 6 | 5 | 1 |
Research team practices trust or honesty and is personally ethical | 5 | 4 | 1 |
Research protocols are sensitive to participants, not stigmatizing, and culturally appropriate | 5 | 4 | 1 |
The benefits to enrolled participants outweigh the risks | 4 | 1 | 3 |
Protocols are scientifically rigorous, valid, and objective | 4 | 0 | 4 |
Study protocols are adhered to | 4 | 3 | 1 |
The research aim is important to the community | 4 | 3 | 1 |
The study is community partnered or engaged | 4 | 2 | 2 |
Note. IRB = institutional review board; HIPAA = Health Insurance Portability and Accountability Act. The table shows the responses to interview question 1: “What does it mean to you to say that you are doing ethical research?”