Table 2.
Study outcomes
| Outcome | Operationalization | Instrument | Data source |
|---|---|---|---|
| Psychological situation | Autonomy preference | API | Questionnaire |
| Psychological wellbeing | SF12—psychological subscale | Questionnaire | |
| Depression | HADS | Questionnaire | |
| Social situation | Social support | BSSS | Questionnaire |
| Social functioning | SF36—subscale ‘Social Functioning (SF)’ | Questionnaire | |
| Social network | NWG | Questionnaire | |
| Cognitive situation | Cognitive functioning | KDQOL-SF™-subscale ‘Cognitive Function (CF)’ | Questionnaire |
| Task switching | TMT-B | Cognitive testing | |
| Selective attention | d2-R | Cognitive testing | |
| Decision-making process | Main reason for choice | Generic (nine items) | Questionnaire |
| Shared decision-making | PEF | Questionnaire | |
| Satisfaction with dialysis modality | Generic (four items) | Questionnaire | |
| Economy | Quality of life | SF36, EQ-5D | Questionnaire |
| Quality adjusted life years | QALYs | Economic calculation | |
| Inpatient stays, outpatient operations, medical consultations, medical applications, absenteeism, duration of stay and logistics in the dialysis centre | Generic (11 items) | Questionnaire | |
| Diagnostic list, medication | Medical report | Medical report | |
| Medical situation | Physical wellbeing | SF12—physical subscale | Questionnaire |
| Target weight, body height, onset of dialysis treatment | Generic (seven items) | Questionnaire | |
| Comorbidity | Expert-assessed | CCI | Medical expert |
| Self-assessed | SCQ | Questionnaire | |
| Socio-demographic characteristics | Family status, children, partnership, education, job status, housing situation, household size, household income | Generic (13 items) | Questionnaire |
German versions: API, Autonomy Preference Index [34]; SF, Short Form of Health Survey [35]; HADS, Hospital Anxiety and Depression Scale [36]; BSSS, Berlin Social Support Scales [37]; NWG, Network Generator [38, 39]; KDQOL-SF™, Kidney Disease Quality of Life Short Form [40]; TMT-B, Trail Making Test-Part B [41]; d2-R, Test d2-Revision [42]; PEF (SDM-Q-9), ‘Fragebogen zur Partizipativen Entscheidungsfindung’ (Shared Decision-Making Questionnaire) [43]; EQ-5D, EuoQoL-5D [44]; CCI, Charlson Comorbidity Index [45]; SCQ, Self-Administered Comorbidity Questionnaire [46].