TABLE I.
Variable |
Patients [n (%)]
|
|
---|---|---|
With pdac | Overall | |
Referrals | 230 | 374 |
hpb surgery and oncology clinics | 218 (94.8) | 331 (88.5) |
Genetics clinics | 9 (3.9) | 23 (6.2) |
Self-referral | 3 (1.3) | 20 (5.4) |
Pending enrolment | 16 (7.0) | 28 (7.5) |
Completed referrals | 213 (92.6) | 346 (92.5) |
Enrolleda | 190 (89.2) | 306 (88.4) |
At diagnosisb | 132 (69.5) | — |
>3 Months after diagnosisb | 58 (30.5) | — |
Family historyb | ||
Complete | 174 (91.6) | 277 (90.5) |
Pending | 11 (5.8) | 20 (6.5) |
Unavailable | 5 (2.6) | 9 (2.9) |
Personal historyb | ||
Complete | 107 (56.6) | 172 (56.2) |
Pending | 30 (15.8) | 48 (15.7) |
Unavailable | 53 (27.9) | 86 (28.1) |
Non-respondersa | 8 (3.8) | 20 (5.8) |
Declineda | 7 (3.3) | 10 (2.9) |
Palliative or deceaseda | 8 (3.8) | 10 (2.9) |
Percentages calculated on completed referrals.
Percentages calculated on enrolled patients.
pdac = pancreatic ductal adenocarcinoma; hpb = hepatopancreatobiliary.