Table 5.
Disease Duration and Significant Diagnosing Event
| Disease Course, mo | Time From First Symptoms to CJD Mentioned in the Differential, mo | Time From First Symptoms to CJD “Likely” Diagnosis or Contacting UCSF, moa | % of Disease Course Before Contacting UCSF or CJD Diagnosisb | |
|---|---|---|---|---|
| Sample sizec | 94 | 60 | 92 | 92 |
| Mean (SD) | 12.0 (10.3) | 6.7 (6.5) | 7.8 (6.9) | 67.7 (0.2) |
| Median (range) | 12.0 (0.8–57.7) | 4.9 (0.4–39.1) | 6.0 (0.9–39.2) | 68.9 (18.6–99.4) |
Abbreviations: CJD, Jakob-Creutzfeldt disease; UCSF, University of California, San Francisco.
a
Time used for whichever comes first: patient being referred to UCSF CJD/rapidly progressive dementia program or medical records suggesting CJD as the likely diagnosis.
b
Either probable clinical diagnosis or definite (pathology-proven) diagnosis.
c
Number of subjects available for each analysis; for 5 subjects, records were not sufficient to identify specific dates.