Table 2.

Proportion and mean number of missing questions for standard instruments and survey-specific questions, overall and by age at diagnosis, jurisdiction and survival phase, with ANOVA p values

Instrument/questions	All respondents	Age at diagnosis			Jurisdiction		Survival phase
		≤59	60–69	≥70	RoI	NI	Short	Long	Very long
Number of respondents	3348 Proportion (mean)	799 Proportion (mean)	1631 Proportion (mean)	918 Proportion (mean)	2338 Proportion (mean)	1010 Proportion (mean)	1614 Proportion (mean)	1075 Proportion (mean)	659 Proportion (mean)
Decisional Regret Scale	0.23 (1.29)	0.16 (0.87)	0.23 (1.31)	0.29 (1.62)	0.30 (1.50)	0.13 (0.79)	0.22 (1.20)	0.24 (1.33)	0.24 (1.43)
		p<0.001			p<0.001		p=0.012
EORTC QLQ-C30	0.08 (1.69)	0.04 (1.04)	0.08 (1.61)	0.15 (2.41)	0.10 (1.94)	0.05 (1.13)	0.08 (1.44)	0.09 (1.77)	0.10 (2.17)
		p<0.001			p<0.001		p=0.022
EuroQoL EQ-5D-5L	0.07 (0.22)	0.04 (0.12)	0.07 (0.21)	0.10 (0.33)	0.09 (0.27)	0.04 (0.11)	0.05 (0.17)	0.09 (0.25)	0.10 (0.29)
		p<0.001			p<0.001		p=0.010
EORTC QLQ-PR25	0.31 (2.94)	0.24 (2.15)	0.30 (2.87)	0.41 (3.76)	0.31 (2.96)	0.32 (2.89)	0.29 (2.54)	0.32 (3.07)	0.37 (3.72)
		p<0.001			p=0.713		p<0.001
DASS-21	0.17 (1.81)	0.13 (1.13)	0.15 (1.71)	0.24 (2.60)	0.20 (2.24)	0.10 (0.83)	0.15 (1.54)	0.18 (1.87)	0.20 (2.39)
		p<0.001			p<0.001		p=0.004
Survey-specific questions
	N (%)	N (%)	N (%)	N (%)	N (%)	N (%)	N (%)	N (%)	N (%)
Treatment received	93 (3%)	14 (2%)	40 (2%)	39 (4%)	72 (3%)	21 (2%)	34 (2%)	31 (3%)	28 (4%)
		p=0.004			p=0.106		p=0.018
Adverse effects	87 (3%)	10 (1%)	46 (3%)	31 (3%)	63 (3%)	24 (2%)	51 (3%)	22 (2%)	14 (2%)
		p=0.016			p=0.595		p=0.143

Survivorship phase: short-term, long-term and very long-term refer to survivors <5, 5–9.9 and ≥10 years postdiagnosis, respectively.

ANOVA, analysis of variance; DASS, 21-question Depression, Anxiety and Stress Scale; NI, Northern Ireland; RoI, Republic of Ireland.