Table 1.
Baseline Sociodemographic Characteristics of Study Participants-telephone Interviews and Focus Groups
| Sociodemographics-telephone interviews (Focus Groups) | Na | %a | Sample mean (SD) a |
|---|---|---|---|
| Breast/Ovarian cancer history | |||
| Personal history onlyb | 6 (4) | 40.0 (40.0) | n/a |
| Family history onlyc | 6 (4) | 40.0 (40.0) | n/a |
| Both personal and family history | 3 (2) | 20.0 (20.0) | n/a |
| Had referral to physician for BRCA genetic counseling | |||
| Yes | 4 (4) | 26.7 (40.0) | n/a |
| Personal history only | 1 (1) | 25.0 (25.0) | n/a |
| Family history only | 1 (1) | 25.0 (25.0) | n/a |
| Both personal and family history | 2 (2) | 50.0 (50.0) | n/a |
| No | 11 (6) | 73.3 (60.0) | n/a |
| Acculturation level (range= 1–4)d | n/a | n/a | 3.0 (0.6); 3.0 (0.8) |
| Interview language | |||
| English | 11 (10) | 73.3 (100.0) | n/a |
| Spanish | 4 (0) | 26.7 (0) | n/a |
| Nativity | |||
| Foreign born | 7 (3) | 46.7 (30.0) | n/a |
| U.S. born | 8 (7) | 53.3 (70.0) | n/a |
| Country of origin (Among Foreign born) | |||
| Puerto Rico | 5 (3) | 62.5 (100.0) | n/a |
| Dominican Republic | 1 (0) | 12.5 (0) | n/a |
| Cuba | 1 (0) | 12.5 (0) | n/a |
| South America | 1 (0) | 12.5 (0) | n/a |
| Age | n/a | n/a | 53.4 (9.7); 49.2 (5.1) |
| Education | |||
| <High school diploma/GED | 6 (4) | 40.0 (40.0) | n/a |
| ≥High school diploma/GED | 9 (6) | 60.0 (60.0) | n/a |
| Income | |||
| <$19,999/year | 9 (6) | 60.0 (60.0) | n/a |
| ≥$20,000/year | 6 (4) | 40.0 (40.0) | n/a |
| Marital Status | |||
| Currently married/living together | 3 (1) | 20.0 (10.0) | n/a |
| Not currently married/living together | 12 (9) | 80.0 (90.0) | n/a |
| Employment | |||
| Currently working | 4 (3) | 26.7 (30.0) | n/a |
| Not currently working | 11 (7) | 73.3 (70.0) | n/a |
| Number of children | n/a | n/a | 2.5 (1.5); 2.6 (1.5) |
| Primary care doctor | |||
| Yes | 15 (10) | 100.0 (100.0) | n/a |
| No | 0 (0) | 0 | n/a |
| Insurance status | |||
| Insured (including public and private) | 15 (10) | 100.0 (100.0) | n/a |
| (Private) | 5 (2) | 33.3 (20.0) | n/a |
| (Public) | 10 (8) | 66.7 (80.0) | n/a |
| Non-insured | 0 | 0 (0) | n/a |
| Medical mistrust (range= 12–60)d | n/a | n/a | 24.2 (11.5); 22.6 (13.2) |
| Religious Identification | |||
| Catholic | 9 (6) | 60.0 (60.0) | n/a |
| Jehovah's Witness | 2 (2) | 13.3 (20.0) | n/a |
| Other-Christian | 4 (2) | 26.7 (20.0) | n/a |
a
Where the first value corresponds to participants in Phase 1-telephone interviews and the second value in parentheses corresponds to participants in Phase 2-focus groups
b
Where diagnosed at young age is defined as ≤55 years old
c
Defined as at least one first degree relative diagnosed with either breast and/or ovarian cancer
d
Where variable is linear and a high score indicates more of the given variable