Table 2.
Results from Phase 1- Quantitative Telephone Interviews
| Telephone Interview Results (N= 15) | Participant Responses N (%) | ||
|---|---|---|---|
| Awareness of genetic counseling for inherited disease | Almost nothing or relatively little | A fair amount/a lot | |
| How much have you heard/read about genetic counseling for... | |||
| Inherited disease? | 5 (33.3) | 10 (66.7) | |
| Cancer, in general? | 8 (53.3) | 7 (46.7) | |
| Breast cancer? | 7 (46.7) | 8 (53.3 | |
| Colon cancer? | 9 (60.0) | 6 (40.0) | |
| Mean total awareness score4 (s.d., scale=1–16) | 9.9 (3.8) | ||
| Perceived Risk of carrying BRCA genetic mutation and intention to undergo counseling | Not at all/somewhat likely | Likely/Very Likely | |
| How likely do you think it is that you carry a BRCA1/2 mutation? | 4 (26.7) | 11 (73.3) | |
| How likely is it that you will make an appointment for genetic counseling within the next 6 months? | 3 (20.0) | 12 (80.0) | |
| Attitudes about BRCA genetic counseling | Disagree or strongly disagree | Unsure neither agree nor disagree | Agree or strongly agree |
| Do you think that getting genetic counseling for breast cancer would be: | |||
| Worthwhile | 1 (6.7) | 0 | 14 (93.3) |
| Worrying/cause you to worry | 5 (33.3) | 2 (13.3) | 7 (46.7) |
| Reassuring | 0 | 3 (20) | 12 (80.0) |
| Uncomfortable | 14 (93.3) | 0 | 1 (6.7) |
| Wise | 1 (6.7) | 0 | 14 (93.3) |
| Healthy | 0 | 0 | 15 (100) |
| Unpleasant | 11 (73.3) | 1 (6.7) | 3 (20.0) |
| Important | 0 | 0 | 15 (100) |
| Mean total attitudes score4 (s.d., scale=8–40) | 33.1 (5.3) | ||
| Behavioral beliefs about BRCA genetic counseling benefits: | |||
| ‘Genetic counseling would help initiate discussions with family members about cancer’ | 0 | 0 | 15 (100) |
| ‘Genetic counseling would reduce my fear and concerns about developing (or having a recurrence) of breast cancer’ | 1 (6.7) | 0 | 14 (93.3) |
| Barriers: | |||
| ‘It would be distressing for me to talk to a genetic counselor’ | 9 (60.0) | 0 | 6 (40.0) |
| ‘Genetic counseling would make me worry about the breast cancer risk of other family members’ | 7 (46.7) | 0 | 8 (53.3) |
| ‘Undergoing genetic counseling could jeopardize my health insurance’ | 3 (20.0) | 1 (6.7) | 11 (73.3) |
| ‘I need to get more information about what genetic counseling has to offer’ | 0 | 0 | 15 (100) |
| Mean total behavioral beliefs scorea (s.d., scale= 15–75) | 63.5 (7.3) | ||
| Familiarity with computers/DVD formats and yse | No | Yes | |
| Do you have a personal computer at home with internet access? | 7 (46.7) | 8 (53.3) | |
| Do you have a DVD player at home? | 0 | 15 (100) | |
| Would you be interested in learning more about genetic counseling for breast cancer using. . | |||
| Computer/web-based program? | 3 (20.0) | 12 (80.0) | |
| DVD? | 0 | 15 (100) | |
| On average, how much time each week do you spend using | Don't use/Use less than 2 h use/week | Use at least 2 h /week | |
| Computer/internet? | 12 (80.0) | 3 (20.0) | |
| DVD player? | 3 (20.0) | 12 (80.0) | |
a
Where variable is linear and a high score indicates more of the given variable (i.e., more awareness, more positive attitudes and behavioral beliefs)