Table 3.
Results Phase 2-Focus Groups
| Focus group results (N=10)a | Participant responses N (%) | |
|---|---|---|
| Quantitative Feedback on Narrative Presentation | No | Yes |
| In general, did you like the information in the presentation? | 0 | 10 (100) |
| Did you find the information in the presentation helpful? | 0 | 10 (100) |
| Would you recommend that women at high risk receive this same kind of information through an education DVD? | 0 | 10 (100) |
| Knowledge about BRCA Genetic Counseling | Mean Score (s.d., range) | Percentage Score (Out of 40 total) |
| Mean knowledge score before viewing presentation | 29.4 (9.5; 14–38) | 73.5 |
| Mean knowledge score after viewing presentation | 36.1 (1.9; 33–38) | 90.3 |
| Mean difference knowledge score pre-post presentation | 6.7 (0.06; p=0.04*) | 16.8 |
| Specific knowledge statements | Disagree/strongly disagree | Agree/strongly Agree |
| If I meet with a genetic counselor it means that I have to undergo genetic testing | 6 (60) | 4 (40) |
| I need to get more information about what genetic counseling has to offer | 0 | 10 (100) |
| Emergent themes from focus group discussions | ||
| 1) Positive responses to narrative approach of presentation | ||
| Easy to relate/identify with personalized stories of women | ||
| 2) Similar barriers to BRCA genetic counseling as reported in Phase 1 | ||
| Lack of awareness/knowledge | ||
| Concerns about learning cancer risk of other family members | ||
| Concerns about health insurance and/or cost | ||
| 3) High interest in learning more about BRCA genetic counseling | ||
| Practical/logistical concerns including cost and health insurance | ||
| 4) Additional barriers to BRCA genetic counseling not directly assessed in Phase 1 | ||
| Questions about consistency with religion/faith | ||
| Competing priorities/lack of time |
a
Focus groups were completed with a subset of participants who had first completed the quantitative telephone interview
*
Significance level p≤0.05.