Table 1. Characteristics of the study participants.
Patients a | |
---|---|
Number of participants | |
Sex (male/female) | 10/8 |
Age groups (number of patients; range) | |
18–44 years old | 3 |
45–64 years old | 7 |
65+ years old | 8 |
Informal care support | |
Living with a patient | 11 |
Family caregiver | 4 |
Informal caregiver other than family caregiver | 2 |
No informal care | 1 |
Diagnosis—cancer | 16 |
Sarcoma (osteosarcoma) | 1 |
Gastric intestinal cancer (appendix, 2; gastric, 1; colon, 1) | 4 |
Brain tumor (1) | 1 |
Urogenital cancer (bladder, 1; cervix, 1; prostate, 2) | 4 |
Head and neck cancer | 2 |
Melanoma | 1 |
Breast cancer | 1 |
Pancreatic carcinoma | 2 |
Diagnosis—COPD | 2 |
Number of patients via recruitment strategy | |
Primary care physicians | 3 |
Palliative care nurses from renowned homecare institution | 1 |
Specialist palliative care team | 12 |
Specialist nurses for respiratory diseases | 2 |
Primary care physicians | |
Number of participants | |
Independent primary care physicians | 18 |
SPCT members | |
Number of participants | |
Palliative care physicians | 8 |
Nurse practitioners/nurses | 4 |
aFour patients far exceeded the 3-month life expectancy (range 192–418 days in the study). Twelve patients remained in the study less than 2 months; of these 12 patients, 1 left the study because of dissatisfaction, 2 left because of transfer to a hospice, and 1 left because of the prospect of receiving euthanasia.