Table 1.
PHASE OF CANCER CONTINUUM | DOMAIN | METRIC | STRENGTHS OF MEASURE | LIMITATIONS OF MEASURE |
---|---|---|---|---|
Screening | ||||
Adherence | NHIS questions (Have you ever had…?) | Cognitively tested | Less accurate than medical records, reporting bias | |
Attitudes and beliefs about screening | ||||
Barriers | MEPS question | Cognitively tested and well validated Available in Sp |
Not specifically tested for cancer screening | |
Cultural competency | CAHPS, cultural competency supplement | Cognitively tested and well validated Available in Sp |
Under development | |
Follow-up on screening | ||||
Self efficacy | ||||
Adherence | NHIS question (Have you ever had at a test where the results NOT normal? Because of the results, did you have additional tests? CAHPS |
Cognitively tested | Less accurate than medical records, | |
Attitudes/fears | ? | |||
Barriers | MEPS question (Which of these best describes the main reason you were unable to get medical care, tests, or treatments? | Cognitively tested | Not specific tested for cancer screening | |
Patient satisfaction with cancer related care | CAPHS question PSC |
Focuses on follow-up for cancer | Under development | |
Patient satisfaction with navigation | PSN | Focuses specifically on Navigation | Under development | |
Psychological distress | PROMIS | Cognitively tested, well validated, computer assisted available online and in Sp | ||
Cultural competency | CAHPS, cultural competency supplement Perceived Similarity to Navigator |
Cognitively tested and well validated Available in Sp Short, specific to navigation |
Under development Under development |
|
Primary Treatment | ||||
Adherence | NHIS question | |||
CAHPS | ||||
MOS adherence scale | ||||
Self-efficacy | CASE-Cancer PAM |
Focuses on cancer Strong psychometrically |
Only used one publication Not cancer specific |
|
Patient Beliefs about Medication | BMQ, BMS | Addresses attitudes towards medication | Not widely used in cancer | |
Barriers | MEPS question | Cognitively tested Available in SP | Not specific tested for cancer screening | |
Patient satisfaction with cancer related care | CAPHS, cancer supplement PSC |
Focuses on follow-up for cancer Available in Sp |
Under development | |
Patient satisfaction with navigation | PSN-L | Focuses specifically on Navigation Available in Sp |
Under development | |
Family satisfaction | FamCare | |||
Functional Health Status | FACIT/FACT | Strong psychometrically Available in Sp |
? Sensitivity to navigation | |
Functional health status and symptoms burden | PROMIS | Cognitively tested, well validated, computer assisted available online and in Sp | ||
Symptoms | FACIT/symptoms | Strong psychometrically Available in Sp |
||
Working Alliance | Satisfaction with Navigation – Interpersonal scale | Specific to navigation Available in Sp | Under development | |
Cultural competency | CAHPS, cultural competency supplement Perceived Similarity to Navigator |
Cognitively tested and well validated Available in Sp Specific to navigation |
Under development Under development |
|
Survivorship | ||||
Treatment | MOS adherence scale Morisky MARS Cost-related non-adherence |
Global measure Brief, widely used Brief Brief, validated, Available in Sp |
Not widely used in cancer Relevant to prescription medications, not widely used in cancer, Relevant to prescription medications, not widely in cancer |
|
Self-efficacy | CASE-Cancer PAM |
Focuses on cancer Strong psychometrically |
Only one publication Not cancer specific |
|
Patient Beliefs about Medication | BMQ, BMS | Addresses attitudes towards medication | Not widely used in cancer | |
Barriers | MEPS question | Cognitively tested | Not specific tested for cancer screening | |
Coordination of care | CAHPS | |||
Patient satisfaction with cancer related care | CAHPS Cancer | Cognitively tested and well validated Available in Sp |
Under development | |
Patient satisfaction with navigation | None | |||
Functional Health Status and symptom burden | FACIT/FACT | Strongly psychometrically, Cancer type specific Available in multiple language |
? Sensitivity to navigation | |
Strong psychometrically Available in Sp |
Symptoms | FACIT | Strongly psychometrically Cancer type specific Available in multiple language |
|
Cultural competency | CAHPS, cultural competency supplement | Cognitively tested and well validated Available in Sp |
Under development | |
End of Life | ||||
Barriers to care | ||||
Functional health status | FACT/FACIT | |||
Symptom burden | Symptoms/FACIT | |||
Functional health status and symptoms burden | PROMIS | Cognitively tested, well validated, computer assisted available online and in Sp | ||
Caregiver burden | ||||
Patient[proxy] satisfaction with EOL care | ??VOICES | |||
Patient satisfaction with navigation | None | |||
Family satisfaction | FamCare-2 | |||
Cultural competency | CAHPS, cultural competency supplement | Cognitively tested and well validated Available in Sp |
Under development |