Table 3.

Outcome measures

Participants	Outcome	Outcome measure
Patients	Primary outcome measure
	Social participation – performance of occupations	Canadian Occupational Performance Measure, performance score (COPM-performance) [18-20]
	Secondary outcome measures
	Social participation- satisfaction with occupational performance	Canadian Occupational Performance Measure, satisfaction score (COPM-satisfaction) [18-20]
	Fatigue impact and severity	Checklist Individual Strength - subscale Fatigue (CIS-Fatigue) [21]
	Physical endurance	6-Minute Walking Test [22]
	Activity engagement	Activity Card Sort (ACS) [23,24]
	Self-efficacy	General Self-Efficacy Scale [26]
	Mood	Hospital Anxiety and Depression Scale (HADS) [25]
	Resource utilization	Self-developed resource utilization questionnaire
	Health-related quality of life	Health-related Quality of Life: Short Form 36 (SF-36) [28]
Caregiver(s)	Perceived caregiver burden	Zarit Burden Interview (ZBI) [27]
	Objective caregiver burden	Self-developed scale for objective care burden questionnaire; amount of care (hours)