Table I.
PedsQL™ Sickle Cell Disease Module Scores, Reliability and Percent Floor and Ceiling Effects for Child Self-Report and Parent Proxy-Report
| Sickle Cell Disease Module Scales |
Number of Items |
n | α | Mean | SD | % Floor |
% Ceiling |
|---|---|---|---|---|---|---|---|
| Child Self-Report | |||||||
| SCD Total Score | 43 | 240 | 0.95 | 62.4 | 18.6 | 0 | 0.6 |
| Pain and Hurt | 9 | 243 | 0.86 | 66.7 | 20.9 | 0 | 5.3 |
| Pain Impact | 10 | 239 | 0.90 | 54.0 | 24.8 | 0.3 | 5.6 |
| Pain Management and Control | 2 | 235 | 0.78 | 54.9 | 29.9 | 7.5 | 10.6 |
| Worry I | 5 | 240 | 0.82 | 63.5 | 26.2 | 0.9 | 10.0 |
| Worry II | 2 | 182* | 0.76 | 73.4 | 29.7 | 3.7 | 22.1 |
| Emotions | 2 | 238 | 0.69 | 62.0 | 33.1 | 8.4 | 19.3 |
| Treatment | 7 | 237 | 0.74 | 64.3 | 21.9 | 0.3 | 4.0 |
| Communication I | 3 | 239 | 0.70 | 73.8 | 24.9 | 0.3 | 23.4 |
| Communication II | 3 | 236 | 0.70 | 57.2 | 30.5 | 4.7 | 13.4 |
| Parent Proxy-Report | |||||||
| SCD Total Score | 43 | 308 | 0.97 | 64.2 | 22.3 | 0 | 5.0 |
| Pain and Hurt | 9 | 306 | 0.94 | 67.7 | 23.6 | 0 | 12.8 |
| Pain Impact | 10 | 308 | 0.97 | 55.4 | 29.9 | 1.9 | 13.4 |
| Pain Management and Control | 2 | 308 | 0.93 | 61.3 | 31.7 | 7.2 | 27.7 |
| Worry I | 5 | 308 | 0.94 | 60.2 | 31.7 | 3.7 | 20.2 |
| Worry II | 2 | 307 | 0.89 | 69.3 | 33.1 | 9.0 | 38.3 |
| Emotions | 2 | 306 | 0.84 | 64.7 | 32.7 | 9.0 | 29.9 |
| Treatment | 7 | 308 | 0.87 | 69.0 | 23.2 | 0.3 | 15.3 |
| Communication I | 3 | 307 | 0.83 | 76.8 | 25.0 | 1.9 | 34.9 |
| Communication II | 3 | 307 | 0.83 | 65.8 | 30.2 | 3.7 | 28.0 |
Note: α = Cronbach's alpha internal consistency reliability. SD = standard deviation. ICC = intraclass correlations. Higher scores equal better HRQOL.
*
For Worry II Scale Score child self-report, the sample size was smaller because this scale was available only for ages 8-18 years.