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. 2014 Nov 14;2014:719–728.

Table 5:

Summary of lessons learned

Lack of clear regulatory guidance for de-identification of decedent records for research use (in contrast to the Safe Harbor Method for general de-identification within a whole population IDR)
Need for metadata on document structure (empty EHR forms; pre-populated fields, secondary person tokens as part of the form question; plain free-text vs. structured provider e-signatures)
Phone number as the most sensitive secondary ID and possible disambiguation methods for phone numbers (local hotel or pharmacy vs. secondary person private number)
Provision of prior information to scrubber about local provider names or permitted alphanumeric IDs, such as experimental drug names.
Importance of accurate deceased status using local institutional data or external data from State Vital Statistics Administration (research context only) or federal death index data